| Joined: Nov 2014 Posts: 73 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | I am 10 weeks out and had a pet scan last Thursday. Got concerned when no one called me back. So 7:30am I was told all bot and nodes above clavical were clear but they found a new low grade spot on lung. They were comparing all my lung X-rays and scans.
Does anyone know anything or had similar experience?
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | It's very common that lung abnormalities are seen on imaging post treatment, most of which resolved over time. Mine were surmised to be from scarring from pneumonia, could be inflammation, infection, and hopefully is something minor.
Good luck with the follow-up.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Ditto what Paul said. There are also environmental things, etc... hugs and hopefully it's nothing.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Ditto. Try not to worry. They will watch over time and as long as it does not grow, all is well. I had same thing. After several scans over a year, it did disappear.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Nov 2014 Posts: 73 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Nov 2014 Posts: 73 | This is what 11/2014 pet about lung said:
Ground-glass infiltrative process in the basilar segment of the right upper lobe, demonstrating minimal metabolic activity, with a maximum SU value of 3.18. � There is also some ground-glass infiltrative process in the left upper lobe. There is an area of consolidation - that may represent some consolidation, with slightly thick-walled cavity in superior portion � involving the posterior aspect of the lingula, abutting the major fissure. This measures approximatively 2 cm. There is 'also a 5 mm smoothly marginated nodule, apparently in the right middle lobe near the confluence of the major and minor fissure. There is a calcified granuloma in the lateral aspect of'the right upper lobe. There are some small nodes demonstrated in the AP � window and anterior carinal region.
This is what the new April 2015 PET scan actually said about lungs:
The ground-glass previously described in the anterior aspect of the right upper lobe has now consolidated into an 11 mm nodule. This Nodule has only very mild metabolic activity maximum SUV of 1.82. The evolution of this density is suggestive of low-grade adenocarcinoma in situ.
Right upper lobe lesion has evolved into a nodular density, this very likely represents a low-grade neoplasm. Follow-up examination is recommended in four months by CT.
I recently saw my chemo oncologist who said I was the big discussion at cancer conference. I don't know what that meant. She also said they all came to look at the scan and asked what radiation Dr had told me. I said he said it was in a bad spot and he didn't think it was anything.
But now that I have read PET I am conflicted. Should I seek a second opinion or just wait?
Last edited by larry6905; 06-03-2015 07:30 AM.
T4,N2,MO SCC of the BOT hpv+ Weekly Taxol/Carboplatin w/ 44 rad 73 GY Nov 2014 - Jan 2015 PEG tube feedings (Liquid Hope). Removed PEG 7/7/2015 Clear 4.9.2015 PET/CT H&N. 11mm low SUV nodule RUL on lung PET/CT 2nd PET 8.25.15 10+ numerous nodules bi later lungs 9.9.15 Lung biopsy SCC Org BOT Avastin and Torisel clinical trial 11/15-3/16 MDA Home 5/23/16 Pet scan 50% growth & +SUV Opdivo 6/2016 Synthroid 100 mcr Scan tumors shrinking Teeth decay 9/2016
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | It it's an adenocarcinoma then it's not SCC - I would ask that they remove it if possible. and maybe try to take the neoplasm to.
Why wait?
hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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