| Joined: Apr 2014 Posts: 13 Member | OP Member Joined: Apr 2014 Posts: 13 | Hoping to see some of my fellow survivors this Sunday. It's one year from my diagnosis and I'll be walking with my beautiful daughter who noticed the swollen lymph node in my neck that got me to the ENT. See you there!
SCC stage 3, BOT, 1 Node, DX 4/10/14 CT4/10/14 PET4/11/14-clear (except for 1 node) FNA4/14/14,4/24/14 T1N2M0 TORS 5/23/14 HPV+ 30 rads completed 8/22/14 NED 11/6/14 😀
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on your one year anniversary Tippie!!! Thanks for participating in the OCF event Here are the links for the NYC walk on April 19th and the Binghamton walk on April 26th. Its not too late to register for these events. OC survivors attend for free. I will be attending the Binghamton walk. Hope to see lots of survivors OCF's NYC walk OCF Binghamton walk ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 13 Member | OP Member Joined: Apr 2014 Posts: 13 | Thank you Christine. I would also like to thank you for the samples I received from the survey! The lozenges are amazing! Hope to meet you one day at one of the walks.
SCC stage 3, BOT, 1 Node, DX 4/10/14 CT4/10/14 PET4/11/14-clear (except for 1 node) FNA4/14/14,4/24/14 T1N2M0 TORS 5/23/14 HPV+ 30 rads completed 8/22/14 NED 11/6/14 😀
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | You're welcome I always attend the NJ walk every September. Thats a great event to go to if you can make it. There are many survivors and OCF members there. Have fun at the NYC walk!!!! Im very glad to hear the survey products are helping you. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 13 Member | OP Member Joined: Apr 2014 Posts: 13 | Well it was a very nice walk, didn't meet any survivors though. There was just one who spoke in the beginning. Mostly all dental students. I did meet a nice dentist who also teaches. I was glad to accomplish it though with my daughter, it ended up by the Brooklyn Bridge with the most beautiful view, Statue of Liberty, ferries, just beautiful. I will try to make the NJ walk.
SCC stage 3, BOT, 1 Node, DX 4/10/14 CT4/10/14 PET4/11/14-clear (except for 1 node) FNA4/14/14,4/24/14 T1N2M0 TORS 5/23/14 HPV+ 30 rads completed 8/22/14 NED 11/6/14 😀
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Thank you very much for participating!!! Im sorry you werent able to meet other survivors. Looking forward to meeting you in September at the Andover NJ walk ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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