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#189145 04-13-2015 04:07 AM
Joined: Apr 2014
Posts: 13
Tippie Offline OP
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Joined: Apr 2014
Posts: 13
Hoping to see some of my fellow survivors this Sunday. It's one year from my diagnosis and I'll be walking with my beautiful daughter who noticed the swollen lymph node in my neck that got me to the ENT. See you there!


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Joined: Jun 2007
Posts: 10,507
Likes: 3
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
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Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 3
Congrats on your one year anniversary Tippie!!! Thanks for participating in the OCF event smile


Here are the links for the NYC walk on April 19th and the Binghamton walk on April 26th. Its not too late to register for these events. OC survivors attend for free. I will be attending the Binghamton walk. Hope to see lots of survivors smile

OCF's NYC walk

OCF Binghamton walk


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2014
Posts: 13
Tippie Offline OP
Member
OP Offline
Member

Joined: Apr 2014
Posts: 13
Thank you Christine. I would also like to thank you for the samples I received from the survey! The lozenges are amazing! Hope to meet you one day at one of the walks.


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Joined: Jun 2007
Posts: 10,507
Likes: 3
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 3
You're welcome smile I always attend the NJ walk every September. Thats a great event to go to if you can make it. There are many survivors and OCF members there. Have fun at the NYC walk!!!!

Im very glad to hear the survey products are helping you.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Apr 2014
Posts: 13
Tippie Offline OP
Member
OP Offline
Member

Joined: Apr 2014
Posts: 13
Well it was a very nice walk, didn't meet any survivors though. There was just one who spoke in the beginning. Mostly all dental students. I did meet a nice dentist who also teaches. I was glad to accomplish it though with my daughter, it ended up by the Brooklyn Bridge with the most beautiful view, Statue of Liberty, ferries, just beautiful. I will try to make the NJ walk.


SCC stage 3, BOT, 1 Node, DX 4/10/14
CT4/10/14
PET4/11/14-clear (except for 1 node)
FNA4/14/14,4/24/14
T1N2M0
TORS 5/23/14
HPV+
30 rads completed 8/22/14
NED 11/6/14 😀
Joined: Jun 2007
Posts: 10,507
Likes: 3
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 3
Thank you very much for participating!!! Im sorry you werent able to meet other survivors. Looking forward to meeting you in September at the Andover NJ walk smile


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile

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