#18790 10-05-2005 11:22 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | OP  Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Jace
Member
Member # 1790
posted October 05, 2005 11:58 AM
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I am a new member also - I do not have cancer, but my husband has been through surgeries, radiation, and now is in chemo treatments. The surgeon refuses to operate anymore on him, I think because of his weakened state (down to 124 lbs from 170 lbs). His cancer started as a spot on his tongue about a year and a half ago and has continually come back (very aggressive). It traveled to his lymphnodes and they removed most of them, then to his neck, and again to his neck, and traveled to his shoulder where he had surgery and most recent it has come back to his shoulder within a month after the last surgery. It has been very hard for him. He cannot do hardly anything physical anymore, but his spirit is strong!!
Jace
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Posts: 1 | From: Colorado | Registered: Jan 2005 | IP: Logged
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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#18791 10-05-2005 12:03 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2003 Posts: 1,163 | Welcome to the Oral Cancer Foundation Jace!!
I am sory your husband has to go through so much. It is a most unforgiving diaease. What type of chemo drugs is your husband receiving?
Hoping that whatever it is is helping him.
There is a special place in heaven for caregivers and I'm sure you qualify. We tend to vent at our caregivers more than anyone else. But in our hearts we love you dearly and know how much you love us. Please keep us posted on how he is doing. You will receive alot of support off this wonderful forum.
All My Best, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#18792 10-05-2005 02:01 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Jace, you'all have been through a really tough time. I'm so sorry. It sounds like you and your husband are both very strong and fighting like crazy to beat this disease. Stay on this forum so that people can help you get through this. The people here help me every day. Wishing you strength. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#18793 10-05-2005 03:42 PM | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Jace,
I am truly sorry for the battles your husband and you have had to endure. Like Danny is saying, he is so fortunate to have you by his side. We can never say enough to thank those that help us along the journey.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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#18794 10-06-2005 07:32 AM | Joined: Sep 2005 Posts: 35 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Sep 2005 Posts: 35 | Jace,
As long as there is spirit to fight - there is life and am sure that if one does not give up hope and your hubby has such a strong force like you beside him - he has to beat the cancer. He has no choices. I honestly pray he recovers so fast that it will amaze everyone. Dont let negative thougts ever bog you down - there is no word called impossible.
Take care and do write if you I can be of any help in anyway - I am a fighter and a survior with a never say die attitude and thats helped me overcome so many odds that have surprised the medical world. For all known reasons - all that I went through in the past 5 years qualifie me for a trip to the grave.
If I could do that - so can your hubby and he will.
Ananth
"FIGHT AND YOU SHALL OVERCOME"
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#18795 10-07-2005 04:25 AM | Joined: Jan 2005 Posts: 4 Member | | Member
Joined: Jan 2005 Posts: 4 | I want to thank everyone that has given me such great support!!! Sometimes I think I am in this alone - it is hard to go into detail with people who ask "how is your husband doing" - I have a tendancy to keep alot to myself so I am not really open to discussing his health to anyone and everyone - this forum has already helped me and just knowing there are others out there who have gone through the same or worse and can give me words of wisdom and support helps tremendously!! thank you so much!!
Jace | | |
#18796 10-07-2005 04:33 AM | Joined: Mar 2003 Posts: 1,384 Likes: 1 Patient Advocate (1000+ posts) | | OP Patient Advocate (1000+ posts)
Joined: Mar 2003 Posts: 1,384 Likes: 1 | Jace, I am concerned that your husband needs to get another opinion. You have not mentioned where he is being seen or weather you have access to a comprehensive cancer center or other large hospital. If he has not yet had radiation therapy, he may be a candidate for further treatments that will offer a better solution.
If you start a "new topic" by pressing the new topic button, you will receive an e-mail each time someone posts a reply to you.
Take care
Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.
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