| | Joined: Jan 2015 Posts: 1 Member | | Member
Joined: Jan 2015 Posts: 1 | I'm a 53 year old female that in 2008 was diagnosed with stage 2 tonsil cancer in both tonsils and on the back base of my tongue...went through 8 long weeks of 5 days radiation treatment as well as 8 weeks of 1 day chemo...on my birthday of that year they took a PET scan and it was gone...although I have been on a continuous surgery for dilation of my throat which started out once a week to now every nine weeks...also now I'm going to see a reconstructive surgeon for my jawbone that destroyed from the radiation...I'm nervous but anxious at the same time...
I hope to meet others on here who have gone through this and maybe be of some help to others from my experience with this. | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hello and welcome. This is a great place for information and advice.
There will be others come along shortly who have had experience with a mandibulectomy and or Osteoradionecrosis.
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Welcome to OCF! Its always great having another long term survivor join our group.
Yes, many members have had varying degrees of the jaw reconstruction surgery (mandibulectomy). Im sure you will connect with others who have similar experiences with the after effects of rads.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Welcome to OCF! Always nice to have a new veteran get onboard, both to learn and share your stories and experiences. Lots of great folks and info here. Don
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
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