Previous Thread
Next Thread
Print Thread
#186740 11-20-2014 07:47 PM
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
I have completed the Right jaw replacement. It was a very long surgery. The team was great and did a good job. So now it is my job to recoup. I think it is going to take a while.
Like a few of you reported my leg hurts more than my jaw. I do find that the more I walk the better. I now walk with out the walker but carefully. Not sure how long all of this is going to take. The incision sites look good and clean. smile


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
DM32ASA

Good luck with your recovery. It will take some time to heal but everyday should get better . Keep taking some walks its good therapy .

Manuka Honey is great for the incision . As it heals it gets tight and causes some pain. It can only be bought at a whole food store but it works wonders. With just a few uses on my mother I can hardly see her scar anymore.

Good Luck
Heidi.

Last edited by sweetpe1; 11-20-2014 08:18 PM.

Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Thank you Sweet Pe1,
I am doing OK, but I was surprised at my mental depression for the last 3 days. frown I was feeling like I just can't do much more. This has taken a lot more out of me than I thought it would. I also have to realize I am only 25 days out. I was wondering how long did you or others take before you were feeling good and off the tube feeding. My last time on tube feeder was 7 months. I am sure that will not be the case this time. I go back for another Check with Dr. on Dec. 2nd. I am hoping I will be doing well by Christmas. I have big plans and I hope I will be able to do them.


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
DM32ASA

It's going to take some time to recover. With my mother I was shocked at two monthes how well she was doing from her surgury. My mother even went back to work at three months out. (Until the reccurance). Dont allow yourself to be mentally depressed. Be strong you can handle it . Hopefully by christmas you can continue with your plans.

Good Luck
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Dec 2003
Posts: 2,606
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 1
I think around 25-30 days after treatment were the absolute worst. All the excitement and activity of treatment is over and the deafening quiet sits in. Athe mind is racing with every pain or lump bringing the most fear, because of the unknown. Of course, situational depression will most surely set in.

I had my feeding tube for about 6 months plus I had 3 bags of fluid and TPN feedings through my mediport during the 6 months.


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Quick update.. I had to stop the formula for feeding Tube. For some reason it was making me sick. I have been fixing my own and blending and able to swallow. smile Also using Boost to help with high protein and other benefits.

My Depression is better. I am in therapy for my jaw for edema, and to expand the jaw opening range. My leg is doing fine. I do have some nerve damage but I think that might improve in time. Right now I think things are looking better than a few weeks ago. smile smile Hope all is going well for everyone.


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015
Joined: Dec 2003
Posts: 2,606
Likes: 1
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 1
I'm so glad to hear your update. It sounds like things are going quite well!


SCC Stage IV
BOT primary
T2N2bM0
Cisplatin/5FU x 3
40 days radiation at 4 sites
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
PLS 02/13
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/
Osteoporosis 01/2018
Heart attack 06_2018

Living life LARGE with no quit in this guy!
Joined: Apr 2006
Posts: 583
DM32ASA Offline OP
"Above & Beyond" Member (500+ posts)
OP Offline
"Above & Beyond" Member (500+ posts)

Joined: Apr 2006
Posts: 583
Update again... Christmas was great. Was able to be there with Mom and give her my special Gift I made her. It was a photo quilt of her family.

I am still in Therapy but was wondering if anyone can tell me how long the edema lasts. It seems like it swells more when I talk or eat. This makes it more difficult to eat and talk. Therapist is getting a pressure mask to see if that will help. Also doing the massages to help redirect the fluids in face to the glands. This also makes it hard to eat..

I think I am just impatient.!! Also how long before you can get a dentures or a plate made. Is is like a year?? It would be nice to have some back teeth.. smile


2004 SCC R.tip 1/4 tongue Oct. 2005 R. Neck SCC cancer/Chemo Cisplatin 2x/8wks. Rad. Removed Jugular vein, Lymph gland & some neck muscle. TX finished 1/20/06... B.Cancer 3/29/07 Finished 6/07 Bi-op 7/15/09 SCC in-situ, laser surgery removed from 1st. sight. Right jaw replacement 11/3/14. 9 yrs cancer free as of Jan. 2015

Link Copied to Clipboard
Top Posters
ChristineB 10,506
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,751
Newest Members
Legalfemme, MaryS, MuddyBob, Beth S, David Gotip
12,731 Registered Users
Forum Statistics
Forums23
Topics17,961
Posts195,920
Members12,732
Most Online458
Jan 16th, 2020
OCF Awards

Powered by UBB.threads™ PHP Forum Software 7.7.5