Previous Thread
Next Thread
Print Thread
Page 1 of 3 1 2 3
Joined: Nov 2014
Posts: 27
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Nov 2014
Posts: 27
Well today is Wednesday this time last week I was very happy I was up flipping out I couldn't breathe. Well as we know we can with the trake,lol. Got passed most of that. Had lower right jaw removed not sure on number of lymph nodes in neck. The surgeon removed little more then needed all bio. Came back clear. Great news for me.. Then I didn't pass the die test so going to short term living for a week ,just to much to handle with trake feeding tube blood drains and walking boot with walker. That apple juice was so good.. Hope to pass next week


just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
Joined: Dec 2010
Posts: 5,260
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
Offline
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2010
Posts: 5,260
Sounds like you are doing well. give yourself time to heal... hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Jul 2009
Posts: 1,399
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,399
Glad you're through all that, you sound like a very courageous and upbeat person. We're all pulling for you.

Sending every good vibe your way!


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 10 years all clear in 6/19 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Joined: Jan 2013
Posts: 1,291
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,291
Hang in there. You sound good considering going through all the surgery and such. Let's get past this week and push onward!


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Nov 2014
Posts: 27
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Nov 2014
Posts: 27
Week 2 after I got out of hospital,I went to a short term living home for a little help. I go back to the Dr. In 2 days,hope to get walking boot off. And feeding tube but not sure about that. They put a strap with a button over the hole in my neck. Does that mean another step closer to that glass of water. Plus really hoping to go home!


just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
Joined: Nov 2014
Posts: 27
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Nov 2014
Posts: 27
Well went to Dr. Appointment today. No more trake tube,removed all drains I had left,no more walking boot. So that leaves me with feeding tube,cause I failed swallowing test,I'm about 14 days out of surgery. Still have a good nit of swelling in mouth. She made another appointment 3 weeks from now. Looking at about 5 weeks post surgery then. Was wondering is this normal? They say everything looks good healing good,just kinda down I guess. If you don't mind me asking how long did it take some of you guys to pass swallow test,thanks


just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
Joined: Apr 2014
Posts: 236
Gold Member (200+ posts)
Offline
Gold Member (200+ posts)

Joined: Apr 2014
Posts: 236
Wasamason

I remember my mother failing the swallow test before she left the hospital. I had to bring her back to the hospital at about 6 weeks post surgery and another test was done. She then past it.

Don't worry just give your self time to heal and you will do fine in a couple of weeks.

Good luck with your recovery
Heidi


Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015


Joined: Jun 2007
Posts: 10,507
Likes: 2
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)
Offline
Administrator, Director of Patient Support Services
Patient Advocate (old timer, 2000 posts)

Joined: Jun 2007
Posts: 10,507
Likes: 2
It sounds like you are recovering amazingly fast for the major surgery you just had. Congrats on all the tubes and drains being removed! In 3 more weeks the swelling will have gone down much more and hopefully you can pass the swallow test.

Best wishes!


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
Joined: Nov 2014
Posts: 27
Contributing Member (25+ posts)
OP Offline
Contributing Member (25+ posts)

Joined: Nov 2014
Posts: 27
Thanks. They say everything is going great then I fail swallow test. Is 14 days post surgery soon to past. Just wondering where I fall with others who had this done


just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
Joined: May 2013
Posts: 134
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: May 2013
Posts: 134
I failed two of them. Never passed. Gained all my weight back then lost a tad to where I felt best. When I choke it's when I've done something stupid.


Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
Page 1 of 3 1 2 3

Moderated by  Eva Grayzel 

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,841
Newest Members
Workingman, yukisuzume, exiledbrit, Keegan, Suzy’scaregiver
12,923 Registered Users
Forum Statistics
Forums23
Topics18,061
Posts196,357
Members12,923
Most Online458
Jan 16th, 2020
OCF Awards

Great Nonprofit OCF 2021 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5