| | Joined: Nov 2014 Posts: 27 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2014 Posts: 27 | Well today is Wednesday this time last week I was very happy I was up flipping out I couldn't breathe. Well as we know we can with the trake,lol. Got passed most of that. Had lower right jaw removed not sure on number of lymph nodes in neck. The surgeon removed little more then needed all bio. Came back clear. Great news for me.. Then I didn't pass the die test so going to short term living for a week ,just to much to handle with trake feeding tube blood drains and walking boot with walker. That apple juice was so good.. Hope to pass next week
just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Sounds like you are doing well. give yourself time to heal... hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | Glad you're through all that, you sound like a very courageous and upbeat person. We're all pulling for you.
Sending every good vibe your way!
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Hang in there. You sound good considering going through all the surgery and such. Let's get past this week and push onward!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Nov 2014 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2014 Posts: 27 | Week 2 after I got out of hospital,I went to a short term living home for a little help. I go back to the Dr. In 2 days,hope to get walking boot off. And feeding tube but not sure about that. They put a strap with a button over the hole in my neck. Does that mean another step closer to that glass of water. Plus really hoping to go home!
just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
| | | | | Joined: Nov 2014 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2014 Posts: 27 | Well went to Dr. Appointment today. No more trake tube,removed all drains I had left,no more walking boot. So that leaves me with feeding tube,cause I failed swallowing test,I'm about 14 days out of surgery. Still have a good nit of swelling in mouth. She made another appointment 3 weeks from now. Looking at about 5 weeks post surgery then. Was wondering is this normal? They say everything looks good healing good,just kinda down I guess. If you don't mind me asking how long did it take some of you guys to pass swallow test,thanks
just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
| | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Apr 2014 Posts: 236 | Wasamason
I remember my mother failing the swallow test before she left the hospital. I had to bring her back to the hospital at about 6 weeks post surgery and another test was done. She then past it.
Don't worry just give your self time to heal and you will do fine in a couple of weeks.
Good luck with your recovery
Heidi
Sweetpe
Caregiver
RE:My Mother
Age 70
Non Smoker
SCC 3/4/2014 Left rear jaw
Mandiblctmy 3/25/2014
35RAD Completed on 06/03/2014
MRI 9/3/2014
25mm lobulated recurrence left mandible/floor of mouth carcinoma
9/23/14 Salvage Surgery
MET(s)
9/23/14 Salvage Surgery Not Successful
Chemo Recommended
1st Round of Cisplatin Chemo Started 10/20/14
Cisplatin stopped 11/20/14. Side affects to bad.
Chemo started again 1/22/15 Carbo/Docetaxel
Passed Away April 22,2015
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | It sounds like you are recovering amazingly fast for the major surgery you just had. Congrats on all the tubes and drains being removed! In 3 more weeks the swelling will have gone down much more and hopefully you can pass the swallow test.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2014 Posts: 27 Contributing Member (25+ posts) | | OP Contributing Member (25+ posts)
Joined: Nov 2014 Posts: 27 | Thanks. They say everything is going great then I fail swallow test. Is 14 days post surgery soon to past. Just wondering where I fall with others who had this done
just found out I have squamous cell cancer 11/11/14
stage 4 lower right jaw bone 11/21/14
stage 2 lymph node 11/21/14
surgery 12/30/14 16 hour. Removed lower right jaw. All lymph nodes from right side of neck,and checked some on left side. The margins all came back clear. Radiation and chemo next
| | | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: May 2013 Posts: 134 | I failed two of them. Never passed. Gained all my weight back then lost a tad to where I felt best. When I choke it's when I've done something stupid.
Dx March 2011 via FNA (49 yrs old)
SCC BoT
HPV+ exact strain unknown
Stage IVa T3N2cM0
Cisplatin x 3, IMRT x 40 (7267 cGy)
One node removed post-treatment (rad dmg)
Clean PET 10/28/11
Swallow therapy
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