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| Joined: Nov 2013 Posts: 9 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Nov 2013 Posts: 9 | Hello all, Hernia diagnosis after months of very poor digestion and cramping. Surgery planned via family doctor Rad onc again not agreeing that this was a result of chemo-I give up with him. I received good mdi news but still not clear news. My upper neck lymph node has reduced from 1.6 cm to 1.3 They would like to see it under 1, though they initially said they would like to see it under 1.5. They aren't suggesting anything other than lets continue to wait and see. I am10 months out of treatment. Though everything else is clear-base of tongue - I can't help but be concerned of course. 3 months another mri is ordered.Though i may be clear here I can't help but wonder if it will still keep shrinking .If not it will require surgery. Any feedback here or experience would be helpful. Rad onc not very thorough in explaining where I am- AM i worrying too much here ?
base of tongue scc 11/02/13 stage 4 hpv16 necrotic lymph-left CYSPLATIN 2x- unable to tolerate 3rd RAD35=imrt completed feb 28-2014 70gy peg -removed -april 2014 bot cancer -not visually evident lymph node still slightly over sized 1.3 cm no surgery planned wait for future scan results march2015 terrible digestion for months inguinal hernia a result? no appetite most days- | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | I asked my radiation oncologist once how long does radiation keeps working being I had read 6 weeks, just as long as treatment lasted, he said in theory, but there is no way to prove that, but at least several weeks. Maybe they can do an FNAB to see if it is necrotic, cancerous or not. I had that done or a lymph node, and showed dead or dying cancer cells, but further testing showed it to be cancerous. Some have mixed reviews with FNAB, but all mine, around 10, were accurate, all done by a pathologist under ultrasound guidance. After that a PET scan was usually done if positive, which highlights uptake activity by the nuclear glucose injection to see of any other possible cancerous areas, then a neck dissection.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Kris had a residual lymph node after his rads and chemo. It lit up on his 3 month post treatment PET, so it was removed in a Modified neck dissection. Pathology showed this to just be a necrotic node with dead SCC cells. I would be reassured that this Lymph node is declining in size. Glad your team will continue to keep an eye on it and you. Enjoy the Festive Season. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
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