| | Joined: Jan 2004 Posts: 1,116 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2004 Posts: 1,116 | Thanks Donna, that is good news.....I have lots of scarring in my neck area too. I will just be so happy if it helps with the tooth situation.....I am doing 20 first, then seeing my oral surgeon....then 10 more.....if all goes well....Thanks for writing back! Carol
Diagnosed May 2002 with Stage IV tongue cancer, two lymph nodes positive. Surgery to remove 1/2 tongue, neck dissection, 35 radiation treatments. 11/2007, diagnosed with cancer of soft palate, surgery 12/14/07, jaw split. 3/24/10, cancer on tongue behind flap, need petscan, surgery scheduled 4/16/10
---update passed away 8-27-11---
| | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | I am getting ready to do the standard 20 before 10 after HBO protocol, my question (especially here at the holidays) how many days do they typically let you take off in between dives, especially the ones before. I managed to fracture a tooth at some point on the opposite side of where my tumor was... And a bit of humor, my PET scan is scheduled on the same day as my 8th anniversary of finishing IMRT.  Kevin
Last edited by Kevin - Memphis; 12-01-2014 01:48 PM.
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Saturday, Sunday, and some holidays. I would say Christmas, NYD. Any days missed are added on, as was my experience. I'm currently halfway through my last 10, due to surgical tooth extractions last month, and did 30 in 2011 also. I hate everyday lol.
Good luck with HBOT, and PET scan!
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I had some issues with being able to clear my ears so always had to have tubes put in. Getting tubes is a very minor surgery (at least to me it is). Some docs will even do the procedure right in their office. The tubes usually fall out on their own.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: May 2007 Posts: 622 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2007 Posts: 622 Likes: 1 | Thanks y'all !!! I just had a tube placed in my right ear Christine. He did it in the office, took 10 minutes. The right side is what got blasted and left me with some Eustachian tube weirdness. Not a big deal at all, the deadening drops were the worst part of it. While I was there, I got a hearing test, my first in 40 years, I was impressed and pleased. I can still hear out to 10k (maybe farther, that's where the test cut off). Just have a dip about 3k due to the tinnitus.
18 YEAR SURVIVOR
SCC Tongue (T3N0M0) diag 06/2006.
No evidence of disease 2010
Another PET 12-2014 pre-HBO, still N.E.D.
�Remember to look up at the stars and not down at your feet. It matters that you don't just give up.�
Stephen Hawking | | |
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