| | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Sounds like good and typical advice at this point. If it does not look gone or on it's way gone, then go back for certain. Usually the initial lap around the track is to take some antibiotics. Wait two weeks. No change then take a biopsy. Given it has been checked and seems quite small try to stay calm as best you can. Good luck!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Nov 2014 Posts: 10 Member | | OP Member
Joined: Nov 2014 Posts: 10 | My ENT did a brush biopsy today. How accurate is that? | | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | I've heard both good and bad reports about brush biopsies. I guess about all you can do is wait and see what results come back from this biopsy. If positive, it's probably wise to do a conventional biopsy (tissue removal) for confirmation. If negative, I would still keep a close eye on the tissue, daily inspections, etc.
From your comments so far I'm still not convinced this ENT is experienced in oral cancer. Have you confirmed that? Many of these guys are not what we are looking for.
take care,
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Nov 2014 Posts: 10 Member | | OP Member
Joined: Nov 2014 Posts: 10 | He actually didn't think the first ENT I saw knew anything. I went for a second opinion with this dr. The first doctor just told me our mouth does weird things and had no clue. The doctor took the brush biopsy said bad results 24hrs regular results 2 weeks and follow up 3 months. However I don't want this white thing which has absolutely no diagnosis on my tongue that long. 
Last edited by ChristineB; 11-25-2014 12:01 PM. Reason: removed link
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 |
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| | | | | Joined: Nov 2014 Posts: 10 Member | | OP Member
Joined: Nov 2014 Posts: 10 | Paul, is that just referring to the soft brush or also the OralCDx brush test as well? I didn't see that mentioned there. | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Often a brush biopsy will not have conclusive results. A surgical biopsy may be required.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2014 Posts: 10 Member | | OP Member
Joined: Nov 2014 Posts: 10 | Is that true for the OralCDx brush too Christine?
Last edited by midsummer; 11-25-2014 12:15 PM.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | As far as I know, yes. From what I understand a brush biopsy picks up a bunch of cells at a time. It does not pinpoint an exact area. If this is the type of biopsy you have had done, dont be surprised if you have to have another more exact one if you get inconclusive results.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Nov 2014 Posts: 10 Member | | OP Member
Joined: Nov 2014 Posts: 10 | Thanks Christine.
I have the first ENT who was clueless that said he would do a punch biopsy on the 2nd if the spot didn't go away, and then the followup ENT who is knowledgable about oral cancer who thinks it may be some sort of fungal or something that may just be there forever. He did the OralCDx brush biopsy yesterday and said we'll see the results in 2 weeks. He doesn't seem to want to do a full on scalpel biopsy or punch biopsy. I spoke with someone over at OralCDx (something they normally don't usually do, but he did out of a courtesy) I watched a video and it shows the process. They told me they have a 2% fail rate, as does the scalpel biopsy. I'm not sure how true that is though. | | |
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