| Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | Hello, three weeks sounds long to wait for a biopsy, here in New Brunswick, Canada it takes a week to just a bit over a week and NB is one of the slower provinces. My husband had to get a biopsy after his surgery and prior to his radiation to insure he did not have a reacurance and it took one week. The pathology report after the surgery took almost a month, usually it takes three weeks. (In this case they are studying the entire surgical resection slice by slice)
Know that you are doing everything you can, Sophie
husband 61@diagnosis painter 6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis 17/9/13 Dx(moderately aggressive) 24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube 2/01/14 (30 tx)rads 60gy N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes) Clear margin, close 2mm inner cheek 15/05/14 cellulitis 3/12/14 Chest CT Clear 27/02/15 cellulitis 8/6/15 cellulitis 10/6/15 Osteomyelitis
| | | | Joined: Oct 2014 Posts: 12 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Oct 2014 Posts: 12 | Thanks Sophie!
After reading your post I thought enough time had pass for at least a follow up call as it would be 2 weeks I've wait for the biopsy results this Wednesday.
They said the results are not in yet. I did express my concern and worries to the receptionist. The receptionist just said, to be honest if the lab found anything alarming with the biopsy they would have call almost immediately to let us know to make an appointment with the patient, so just try to relax and wait for your scheduled appointment. She also said she's just talking from her experience so don't take what she says as the end result but just try to relax for now.
So I guess this has calmed me down for now.
P.S - I also would like to apologize to you all for my last post. I guess that was too revealing to everyone and I was having a panic attack. I'd just like to be as transparent as possible to anyone who might be in the same situation as me. | | | | Joined: Oct 2014 Posts: 12 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Oct 2014 Posts: 12 | Hey everyone. Results from the biopsy came back, it's just a cyst. The official wording of the biopsy was this:
[quote]Gross Description: The specimen consisted of one piece of tan soft tissue, measuring 0.5x0.5.0.3cm. It was bisected and submitted in total for histology
Microscopic Description: Sections show oral mucosa composed of stratified squamous epithelium overly fibrous connective tissue. There is an invagination of surface epithelium into the underlying connective tissue that is partially lined by parakeratinized stratified squamous epithelium, containing some desquamated keratin and surrounded by a wall of lymphoid tissue with germinal centers.
Diagnosis: Tissue from right posterior tongue base: consistent with lymphoepithelial cyst.[/quote]
Sorry about saying "dime sized" in my initial post, guess it was smaller. Hope it's not a bad thing that I posted my full results but I just wanted my situation to be transparent as I said before.
So what's next for me? I'm just going to try to relax for now. I have a follow up appointment in 6 months with the Oral Maxillofacial Surgeon just to see if it grows back.
I also (basically begged) my doctor for a referral to see the best ENT specialist in my city to have a better look at my throat as I can see what appears to be bumps, or papillomas at the back of my throat. My family doctor said it's just cobblestoning of the throat and I shouldn't be worried, but I insisted on the referral. The line is long and I probably won't see this ENT until around May next year as my case is considered low priority with this diagnosis.
Thanks for all your help everyone. If this was stressful to me for the past month and a half I can't imagine what it was like for you all... you all are truly soldiers.
I'll still be poking around these forums every now and then. As always appreciated, let me know what you all think. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | That's terrific - see now you know!
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Oct 2014 Posts: 12 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Oct 2014 Posts: 12 | Thanks Cheryl!
I just wish the Greater Toronto Area had some sort of screening to test for pre-malignant/dysplasia in oral tissue. | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | You need to find a top notch ENT to keep an eye on you. 
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | I second Cheryl, when you have had oral growths or irregularities you need to have follow ups with an ENT specialist and do a regular check up on yourself for any changes. All the best and I am so happy to hear the good news, Sophie
husband 61@diagnosis painter 6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis 17/9/13 Dx(moderately aggressive) 24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube 2/01/14 (30 tx)rads 60gy N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes) Clear margin, close 2mm inner cheek 15/05/14 cellulitis 3/12/14 Chest CT Clear 27/02/15 cellulitis 8/6/15 cellulitis 10/6/15 Osteomyelitis
| | | | Joined: Oct 2014 Posts: 12 "OCF Canuck" Member | OP "OCF Canuck" Member Joined: Oct 2014 Posts: 12 | Thanks for the advice Cheryld and Sophie! They actually moved up my ENT appointment, it's not the ENT I wanted to see unfortunately but its at Credit Valley Hospital in Mississauga (near Toronto). So I'll see how that goes on Thursday this week. | | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | Cheers, relieved for you! Sophie | | |
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