| Joined: Nov 2014 Posts: 10 Member | OP Member Joined: Nov 2014 Posts: 10 | Hi everyone! I'm 29 years old and a non smoker. Mommy to a beautiful 2 year old who still nurses due to rare food allergies. Of course all things that scare me medically happen on the weekend. While I was brushing my teeth last night I noticed a white/yellowish bump on the side of my tongue. It's painless and I have no clue how long it's been there. Definitely not an ulcer, I've had those and know how painful they can be!! I'd love any advice on who to see. I have a union dentist who I don't really trust knowledge wise.. Should I see an ENT, Oral Surgeon or who?? I attached some pictures - any advice would be appreciated!! I'm freaking out  The picture is the same bump but all different angles. I'm scared it could be cancer..
Last edited by ChristineB; 11-16-2014 12:07 PM. Reason: removed photos
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Welcome to OCF. We aren't doctors but one common thing about most oral cancer is it does not grow much in a day or two. Most likely it is not oral cancer but watch it for a couple days and call the dentist office and ask if they perform screening for oral cancer. If they do, then go get it checked there. If not, an ENT is the next and better option to detect oral cancers.
I suspect you googled around and found this place. Please try to limit any more searching as 99% of what you find is BS and just scary nonsense. This place is backed up with medical experts.
Stay calm but vigilant. Remember oral cancer is very low chance cancer.
Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Nov 2014 Posts: 10 Member | OP Member Joined: Nov 2014 Posts: 10 | Could it start like this? I'm just curious what else it could be? I'm terrified  I was just hoping someone could help calm my fears. My dentist said she would look at it but would refer me to an oral surgeon if she didn't like the way it looked. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I would rush to the dentist. From what I see, you should work on oral hygiene more. Your tongue does not look healthy.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | I understand your anxiety. Trust me, we all get it. Again, I am not a doctor but even if it was cancer and that is the extent of it, it should be pretty standard to remove at this point.
There is no way right now to help determine if it is cancer. The only way is for a medical professional to examine you and possibly perform a biopsy to make an assessment. The ONLY certain way oral cancers are determined is via a biopsy so no matter what you read or get responses here are not going to get you that answer.
So, back to anxiety. We know the feeling. What you have to try to do is to slow down the mind from going wild with the what ifs. You can totally freak yourself out, even having your funeral planned if you don't get control over your anxiety.
Take one day at a time. Remember, even if it is cancer, a couple days is not going to change anything in terms of diagnosis or treatment or outcomes.
It is much the same as driving down the road thinking every oncoming car is going to swerve over and kill you in a head on collision. You learn to manage these possibilities. You need to do the same with the little white dot being just another well little white dot. It is not going to kill you and almost with certainly it is not cancer.
Lastly, another standard saying around here is it is NOT cancer unless PROVEN.
Hang in there and do the best to remain convinced it is NOT cancer and one day at a time until you see the doctor/dentist.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! I have removed your photos. This site is made up of oral cancer patients and caregivers who will try to help you. Unfortunately we are not qualified to know from looking at a photo what is wrong (if anything).
My suggestion would be to get checked out by an ENT. Our "golden rule" around here is.... "Its not cancer until the biopsy says it is. Any sore you have had in your mouth for 2 or 3 weeks that does not heal by itself should get checked out by a professional."
Hope its nothing serious. Best wishes!!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2014 Posts: 10 Member | OP Member Joined: Nov 2014 Posts: 10 | Thanks everyone. Uptown I have a lot of dental issues could have a Mercedes in stead of the work I have had done in my mouth.
As for an ENT can I see any ol ENT? I'm in NJ and there's a bunch by me but only seeing regular stuff listed on their sites nothing about OC. Does there happen to be any list for recommended doctors in states? | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | No list of doctors on this site. Look for an ENT who preforms surgeries, they are the kind who have extra years of schooling and will be (hopefully) most experienced in treating oral cancer patients. When you call for the apt. ask if they treat OC patients and how often. You want someone familiar with mouth issues, not the type of ENT who mainly puts tubes in childrens ears. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Nov 2014 Posts: 10 Member | OP Member Joined: Nov 2014 Posts: 10 | So the ENT didn't want to biopsy today and said it looks benign. Like a little pimple but it's still painless. He said to come back if it's still there in two weeks. Is that okay? I've known about it a week but not sure how long it's actually been there. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Only thru a biopsy can the doctor determine for certain if something is benign or cancerous. As I stated above... any sore that has been in your mouth for 2 or 3 weeks and it has not resolved itself needs to be thoroughly checked by a professional. Wait it out and hopefully it will heal on its own. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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