| Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | My mother has been being treated at a local Hospital here in Louisiana. She has already had two surgeries and we are to the point where Chemo would be our only hope. Well tomorrow 10/15 was suppose to be my mothers doctors appt. for what we are told were Chemo classes . Her Chemo was suppose to start on Oct 21st .We get a phone call today and were told the appointment has to be rescheduled . We are not happy . My mother really needs to start the Chemo ASAP. and now due to an error that was made with the scheduling we are told to wait another week.
I am ready to pack a suitcase and go to MD Anderson in Texas. Well I call MD today and I was told it would also take 2 to 3 weeks for an appointment there. My question is Does anyone know a faster way to see a Oncologist in the Head & Neck section over there.
I told my mom maybe we should just drive to the emergency room and start there. Any Advice Anyone.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | I suggest calling again and asking about being put on a list for taking any appointment from a cancellation. If necessary call every single day. Never know, you could get lucky and get her in on a last minute cancellation.
Good luck!! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks Christine that's a good idea . I'm going to call everyday. I gave all my mothers insurance information to a receptionist at MD in the Head & Neck Dept today. Hopefully I can get her in that hospital . I think that is where she needs to be.
Also Christine I'm really worried because according to the MRI it reads "25mm lobulated recurrence left mandible/floor of mouth" . It seems like that's a large area. What is your opinion ?
Last edited by sweetpe1; 10-14-2014 07:21 PM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | I agree that being seen at MDA would be a good choice given the amount of cancer treatment your mother has gone through. With each complication the choice and options become more difficult and less common so the experts really do offer more insight in these cases. Good luck.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | 25 mm is 2.5 cm which is a little over an inch. It's not small but not huge. Hugs. Push for md.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | Thanks Cheryl somehow you just made me feel a little better. Even though its not to small I thought it was larger than that. we are praying the Chemo will help.
Good luck Heidi
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Apr 2014 Posts: 236 Gold Member (200+ posts) | OP Gold Member (200+ posts) Joined: Apr 2014 Posts: 236 | After going to the Chemo classes and meeting with the Oncologist today my mother has decided to stay here in LA to have her Chemo treatments done. MD Anderson said it would be 2 to 3 weeks before we could get in and by the time everything gets started all over again it would be to much time passing. So on Monday she starts Cisplatin +5-FU (PF). I hope she don't get to sick from this. Lord knows I am so worried for her.
Last edited by sweetpe1; 10-16-2014 06:09 PM.
Sweetpe Caregiver RE:My Mother Age 70 Non Smoker SCC 3/4/2014 Left rear jaw Mandiblctmy 3/25/2014 35RAD Completed on 06/03/2014 MRI 9/3/2014 25mm lobulated recurrence left mandible/floor of mouth carcinoma 9/23/14 Salvage Surgery MET(s) 9/23/14 Salvage Surgery Not Successful Chemo Recommended 1st Round of Cisplatin Chemo Started 10/20/14 Cisplatin stopped 11/20/14. Side affects to bad. Chemo started again 1/22/15 Carbo/Docetaxel Passed Away April 22,2015
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | I always get caught up by the LA. Think Los Angeles rather than state. 5FU is typically administered over a number of days, usually 5. Either you get a portable pump and go home or they administer via IV and you stay in the hospital.
5FU seems to be the ingredient in the typical induction chemo mix that makes the most side effects so just be ready if she has more side effects than you might expect.
With you there helping, she will get through it, we all did, some more banged up than others but we find the exit door.
There are many different drugs to alleviate side effects; as soon as you see them showing up, just make sure the staff are aware and find something that should help.
Good luck
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2011 Posts: 126 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Dec 2011 Posts: 126 | Hello MD Anderson patient here who is also from Louisiana! Dr. Jeff Myers is my doctor at MD Anderson and he is great. However, I actually ended up having my radiation and chemo at Mary Bird Perkins in Baton Rouge LA. I am not sure what part of LA you are from, but Mary Bird was actually really good. Initially we were planning on doing all of the treatment at MD Anderson (where I had my surgery), but my doctors at MD Anderson discussed the treatment plan with doctors at Mary Bird and ultimately they decided the treatment at Mary Bird would be the same as at MD Anderson, as they use the same radiation machines. We were really pleased with the attention we got at Mary Bird and I am very happy we ended up making the decision. Feel free to message me if you want to discuss further!
Emily - 24 years old at diagnosis HPV-, no risk factors T2N2b Squamous Cell Carcinoma Left oral tongue, poorly differentiated Hemiglossectamy, reconstruction, partial neck dissection 30 Radiation treatments, weekly chemo (cisplatin) 1/13/12 last day of treatment Diagnosed October 2011
| | |
Forums23 Topics18,235 Posts197,106 Members13,293 | Most Online1,788 Jan 23rd, 2025 | | | |