|    |       Joined:  Nov 2009  Posts: 644 Likes: 1    "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)   |      OP      "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)    Joined:  Nov 2009  Posts: 644 Likes: 1  |    Nearly four months after radiation I have a badly decayed tooth on my right side. I was irradiated on the left. The X-Ray shows decay going deep into the nerve. I see the hospital dentist on Monday and by good fortune have an RO appointment beforehand. I haven't discussed the issue with the dentist properly yet for various reasons but he seems to be considering extraction of this molar or less likely, root canal. He seems to be in two minds about HBOT. 
  If I had little radiation to the right side, do I need HBOT? If the medical people "discuss" the risks with me, should I insist on oxygen treatment. From what I can find out, it would be quite doable for me because the treatment is in a place I can drive to (nervous city driver)but it sounds like an almighty pain in terms of time taken. Could it also be overkill for the good side of the mouth?
 
         
1996, ovarian cancer surgery + cisplatin and taxol.  September, 2007,  SCC of left lateral tongue. Excision.  October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.  February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
  |      |       |               |    |       Joined:  Jun 2007  Posts: 10,507 Likes: 8    Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)   |           Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 10,507 Likes: 8  |    Yes, you still should do HBO.  Scatter radiation has gone on the good side of your mouth too.          ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44  2x cispltn-35 IMRT end 9/27/07  -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma  2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years  very happy to be alive       |      |       |               |    |       Joined:  Jul 2012  Posts: 3,267 Likes: 4    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Jul 2012  Posts: 3,267 Likes: 4  |    As far as HBOT, I had to wait until I had a clear scan, and 6 months after treatment  to do it. Some earlier reports suggested it may promote cancer, my doctors seem to think there is some type of risk, and had to visit my oral surgeon a number of times before he finally decided extractions/hbot outweghed the risk, in my case, and had spoken with my RO and ENT. If I didn't really need it, had other options, I would not have any. I read one report that says hbot doesn't promote cancer. Maybe coincidently, but in 2011, a two months after doing HBOT I had a recurrence. You may want to speak with your RO about this. http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3510426/Good luck          
10/09 T1N2bM0 Tonsil  11/09 Taxo Cisp 5-FU, 6 Months Hosp  01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux  10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site  06/17 Heart Attack Stent  02/19 Finally Cancer Free Took 10 yrs
 
 
 
 
 
     |      |       |               |    |       Joined:  Jan 2013  Posts: 1,294 Likes: 1    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Jan 2013  Posts: 1,294 Likes: 1  |    When you see them again, make sure to discuss all options. For example, rather than extracting, the tooth can get a root canal and can also be "ground down", forgot the official name, but basically bring the tooth down to the gum line but leave the root in place. If this works then you can avoid the HBOT treatments.
  I know abut HBOT but not researched it much at all since thus far that bridge is not on the horizon, knock on wood. So far my teeth are holding up. I have had some dental work done post treatment but it was not associated with the rads.        
Don Male, 1955 Great health except C Dec '12   DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes   1 tooth out Jan '13   2nd tooth out   Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013  CRT 70gr 2x35, weekly carbo150  ended 5/29,6/4
  |      |       |               |    |       Joined:  Nov 2009  Posts: 644 Likes: 1    "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)   |      OP      "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)    Joined:  Nov 2009  Posts: 644 Likes: 1  |    Thanks! Saw RO and hospital dentist today. Former said I could have an extraction because the radiation (on that side?) was less than 50 gy. But I didn't have an extraction, just a filling because the tooth has settled down and it's quite a useful one for my limited eating. We've bought it a little bit more time. 
  The bigger part of my life right now is getting from appointment to appointment in car to Park & Ride, then buses with lots of walking thrown in.         
1996, ovarian cancer surgery + cisplatin and taxol.  September, 2007,  SCC of left lateral tongue. Excision.  October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.  February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
  |      |       |               |    |       Joined:  Jun 2007  Posts: 10,507 Likes: 8    Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)   |           Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)    Joined:  Jun 2007  Posts: 10,507 Likes: 8  |    Congrats on saving your tooth!!!  Every single one is so important.  You are very lucky           ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44  2x cispltn-35 IMRT end 9/27/07  -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma  2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years  very happy to be alive       |      |       |               |    |       Joined:  Dec 2003  Posts: 2,606 Likes: 2    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Dec 2003  Posts: 2,606 Likes: 2  |    I'm always happy to hear about successes!        
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days  radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08.  Cervical Spinal Stenosis  01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy  01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
  |      |       |               |    |       Joined:  Jan 2013  Posts: 1,294 Likes: 1    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Jan 2013  Posts: 1,294 Likes: 1  |    Good news! And thanks for sharing the actual radiation map can be referenced to assess if/where extraction can be done without HBOT. Good to know as this does not seem to be common knowledge.
  Don        
Don Male, 1955 Great health except C Dec '12   DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes   1 tooth out Jan '13   2nd tooth out   Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013  CRT 70gr 2x35, weekly carbo150  ended 5/29,6/4
  |      |       |               |    |       Joined:  Jul 2012  Posts: 3,267 Likes: 4    Patient Advocate (old timer, 2000 posts)   |           Patient Advocate (old timer, 2000 posts)    Joined:  Jul 2012  Posts: 3,267 Likes: 4  |    They say it's anything above 60Gy, in the mandible, maxilla, that is risk for ORN, amongst other concerns, although some doctors say above 45Gy too. Some, with primary tumors in this area do get 70Gy or so, uninvolved areas can be less, and is always best to involve the RO, as was done.         
10/09 T1N2bM0 Tonsil  11/09 Taxo Cisp 5-FU, 6 Months Hosp  01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux  10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site  06/17 Heart Attack Stent  02/19 Finally Cancer Free Took 10 yrs
 
 
 
 
 
     |      |       |               |    |       Joined:  Jan 2013  Posts: 1,294 Likes: 1    Patient Advocate (1000+ posts)   |           Patient Advocate (1000+ posts)    Joined:  Jan 2013  Posts: 1,294 Likes: 1  |    The discussions I had with the RO about dosage was 60gy and above is needed to kill the cancer. Those are average and with contouring and painting and such, a specific area probably can get less than 60 but I don't have any details on that.
  I've always assumed but not read for certain that those with more rads to the jawbone are more inclined to suffer ORN later.
  Not going to bother digging in that hole until the situation arises, certainly not going to fret about that until that time.        
Don Male, 1955 Great health except C Dec '12   DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes   1 tooth out Jan '13   2nd tooth out   Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013  CRT 70gr 2x35, weekly carbo150  ended 5/29,6/4
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