| | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Hello all,
I just wanted to give u a little update on my check up with my surgeon/ENT.... I saw him today 9/8/14. First thing he said was "you look great". I told him about the bumps on both inside cheeks and under my tongue. Plus my tongue swollen. So he put on his gloves and said lets have a look. First thing he said was the one under my tongue was a blocked salivary gland. The ones on my cheek, irritation from chewing and eating. Swollen tongue, from blocked glands. He said to me 4 times, that is all normal from treatment. See you in 2 months after my pet scan... I am relieved. Prayers to you all.
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Jan 2013 Posts: 1,294 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,294 Likes: 1 | Good report! Glad things healing is progressing nicely.
Don
Male, 1955
Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
| | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thanks. I noticed since i started eating a lot of crazy stuff has been going on in the mouth. Plus, my swallowing hurts a little. He said its from using the muscles and im not fully healed.... He also said that its a 6 month to a year recovery . Or longer.. When i was going through surgery i thought i would be back to work in no time. Well was i wrong..... Gotta take it day by day, and just happy to be alive and fighting. Prayers to all
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news! You can start work any time you feel like it. You've already surpassed all reasonable expectations. 
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Lol. Thanks. One problem, my employment terminated me. I worked there for 10 years. Busted my hump for them. I plan on getting a lawyer involved soon...
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Good luck pursuing that. Start looking for something if you feel up to it. Only you know.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thanks. I still need to heal up some.
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
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