| | Joined: Sep 2014 Posts: 1 Member | OP  Member
Joined: Sep 2014 Posts: 1 | So, beneath my right tonsil, I've had this strange accumulation of tissue/growth? I have no clue what it is but its been there a while, kinda painful to touch, and semi-firm. I've attached links to pictures, I'm just terrified that I have no clue what it could be. I went to an ENT for this issue, but he was looking at something else when I told him (some other bump in the back of my throat, which has since gone away, not what I told him was concerning me.) Any thoughts? It reminds me of a flap, I'm just wondering it its normal tissue or not (no one to compare to because no one seemd to be able to stick their tongue out far enough to let me see back there).
It's on the left side of the picture, kinda near the lingual tonsils. [img:center]https://www.flickr.com/photos/127599848@N08/15119604086/[/img] [img:center]https://www.flickr.com/photos/127599848@N08/14956048947/[/img]
Hi
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I would go to another ENT. Remember we are not doctors.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 6 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 6 | Dabanks, welcome to OCF!
Even if your photos had been shown on the forum (they didnt work???) we would not have been able to identify what it was. Its best to find an ENT who specializes in oral cancer to give you a thorough exam. Only thru a biopsy would they be able to determine if the tissue is cancerous or not. It could be any number of things other than cancer. Hopefully its nothing too serious and can easily get corrected.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Dabanks - I had tonsil cancer myself about a year ago. Mine swelled up all the way to the uvula, ie my throat was half blocked. Of course that scared the doctors to death. It also got me an earlier surgery date.
My swelling was very firm as the ENT said upon exam, but it wasn't tender to touch. It didn't affect my breathing or my ability to chew or swallow.
Do what the others suggest, ie get yourself to an ENT experienced in oral cancer. All ENT's are not so experienced. If he suspects cancer he will suggest a biopsy of the mass. Even if he doesn't there's nothing preventing you from suggesting it, even if only to see what he says.
Hang in there, you will get through this, and we will be here backing you up every step of the way.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | | "OCF Down Under" Gold Member (200+ posts)
Joined: Mar 2014 Posts: 286 | I'm sorry, I just get an image of a kid saying "It might be a tumour" and Arnie saying "Its not a tumour!". Its been a routine joke around this house all year.
Of course its a question for an ENT. Not necessarily a different one, there is probably a reason he discounted it in the first place. If you go back and finds it still there he'll do a biopsy if it looks abnormal. A biopsy is the only definitive way to diagnose it.
Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
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