| | Joined: Jul 2014 Posts: 5 Member |  Member
Joined: Jul 2014 Posts: 5 | Hi Kevin, The Canadian company is only a distributor of BioXtra. I forget where it's produced. I originally emailed the Canadian company,but after getting no response I ordered the mouthwash and paste via Amazon UK. Unfortunately, I can't use either because they contain Fragrance, which the Canadian company FAQ page does not list: http://www.bioxtra.ca/FAQ.htmlAlthough this product is very odor neutral, the "fragrance" ingredient seems to be added for flavor as one if it's ingredients was a citrus flavor oil. I can't use any product containing flavor oils only. They are simply too strong for me and make my mouth burn. But my mouth is very sensitive and others might be able to tolerate what I can't. I know in a previous post a member in the UK said she purchased BioXtra paste (I believe), liked it and was using it. Hope this info is useful to you. Know it's more than a month after you originally asked for feedback. | | | | | Joined: Jan 2015 Posts: 1 Member | | Member
Joined: Jan 2015 Posts: 1 | Hi Guys, I have Sjogrens, and live in Australia. Just an FYI - While I am waiting for the old Biotene to come back, I am using an Australian brand called OralSeven which has a toothpaste, mouthwash and gel. According to the pharmacist who sold it to me, they use pretty much the same formula as the old Biotene. It seems from their website that they sell in Europe, Asia and Australia but I'm sure you could online shop if you were desperate from an online pharmacy here is the website http://www.oralseven.com/main/can't wait for the Biotene to come back! Pen | | | | | Joined: Jun 2014 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2014 Posts: 38 | Hi all,
I have been reading through this thread (not every post on all 16 pages), but I am not quite sure what the status of biotene is. I'll summarize my limited understanding, and perhaps someone reading can fill in the blanks?
I have been using the mouthwash once a day, as part of a nightly ritual. I've heard that the company's product was changed when another corporation bought it, and is now considered inferior?
And, that a new formulation is supposedly in the works, but it's been a "slow train coming". When I was in treatment (summer of '14), the nurses were recommending it, apparently unaware of the changes.
What are people using in lieu of Biotene?
Sorry if this seems like the Dept of Redundancy Department, but I'm having trouble reading the runes...
Head and neck cancer,
Squamous cell carcinoma,
HPV p16, Stage 3N (6/14) Occult origin;
58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14
1.5 years clear of cancer, at this point.
"This, too is part of Life's Rich Pageant!"
| | | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2008 Posts: 117 Likes: 1 | What I noticed with the change was 1. They removed the enzymes that simulate saliva's protective abilities in fighting bacteria. 2. They made the formula so irritating to my mouth I could no longer use it. If you read the reviews at places that sell Biotene products you will see many angry comments from people who are not in this forum, and who are saying the same things.
I stopped using their mouthwash and switched to Rite-Aid Dry Mouth mouth wash. It has the enzymes in it, but I have no way of knowing if this is only some trace amount that does no good.
As for their toothpaste, I found that Biotene now has a Gentle Mint flavor that is not too harsh on my mouth. It is also easier on my mouth than all other brands I tried. To make up for lack of enzymes, I use a xylitol tablet after brushing to encourage saliva flow.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | | Joined: Jun 2014 Posts: 38 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jun 2014 Posts: 38 |
Head and neck cancer,
Squamous cell carcinoma,
HPV p16, Stage 3N (6/14) Occult origin;
58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14
1.5 years clear of cancer, at this point.
"This, too is part of Life's Rich Pageant!"
| | | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | | "OCF Canuck" Senior Member (100+ posts)
Joined: Sep 2013 Posts: 105 | Stephen, my husband uses BioExtra: ingredients include compounds that are similar to saliva which provides protection for your mouth. Also, the toothpaste and the mouthwash have fluoride to protect your teeth.
The oral spray and gel provide temporary relief for dry mouth. I notice Stephen uses this at night when he is tired.
PS:if you order in batches of 12, you get a huge discount.
husband 61@diagnosis painter
6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis
17/9/13 Dx(moderately aggressive)
24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube
2/01/14 (30 tx)rads 60gy
N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes)
Clear margin, close 2mm inner cheek
15/05/14 cellulitis
3/12/14 Chest CT Clear
27/02/15 cellulitis
8/6/15 cellulitis
10/6/15 Osteomyelitis
| | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Any updates on the new Biotene replacement? I'm almost out of my stockpiled tubes of the original stuff!
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Margaret, not sure if you noticed the dental study thread. Check out part 2 of the survey. They are testing dry mouth products. The members receive a 2 week supply. Maybe this could help? DENTAL SURVEY PART 1... Online Dental Survey DENTAL SURVEY PART 2.... Part 2 Product Testing and 2 part online survey *** part 2 is only available to patients in the US, Canada or Mexico
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: May 2008 Posts: 551 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: May 2008 Posts: 551 | Thank you, Christine! I did see this after I had posted. I completed both surveys. YAY!
Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
| | | | | Joined: Jan 2015 Posts: 37 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Jan 2015 Posts: 37 | I completed both surveys and have not heard back from them since. Still waiting for my samples. 
Andrew
4x survivor
1998 - SCC of larynx
...laryngectomy, tracheotomy, radiation, caries, HBO, teeth extr, TEP
2002 - lung cancer, wedge resection
2014 - SCC of BOT, pharynx, oropharynx, HPV-, stage IV, T2N0MX, invasive, poorly differentiated
...chemo (carboplatin, taxol), dc'd due to neuropathy
2015 - SCC of palate
...Feb-April IMRT (46 x 70 Gy)
...Jan 2015 - May 2016 cetuximab 500 mg q week x 55wks
2016 - metastases to mediastinum, lungs, spleen, pancreas
...Aug-? pembrolizumab q 3 wks
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