| | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Hi, well today I saw both my radiologist and chemo doctor for check ups. I am 4 weeks out of treatment. 30 rads, snd 3 cisplatin. I was worried about my salivary glands. They are swollen, which started when I began eating solid food by mouth about a week ago. I also have the dry mouth .. Both doctors told me this is from my treatments. My glands are trying to work, and they are inflamed. They also told me I look great, and maybe in 2 weeks the peg tube comes out. I am off all meds, pain meds, etc. I take 2 aleve. Only thing that really bothers me is the tightness in my neck and some swallowing discomfort. Which I can handle. My RO told ne he has another patient with the same surgery and treatment, this guy is 4 months out of treatment. RO said I am 100% lookin better and doing better than this patient. This report made me feel good........ A week from today I see my surgeon and ENT for checkup.... Thanks and prayers to all of u....
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Congrats on your great check up! Sounds like you have made remarkable progress with your recovery. It will get so much easier as time goes on. Keep up the good work 
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thank you. This forum has really been great. Its nice to be able to talk to people who understand what we go through. Mentally and physically. I was a nervous wreck. I am still a little, but my doctors told me its nothing to worry about. All is normal.. peace to all
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Excellent progress report! Keep on steaming forward, you'll be rolling full steam ahead in no time.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thank you.. prayers to all.
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Great news! Keep doing what's working. Plan to get off the Aleve, too. It can cause mouth blisters in some and stomach issues like ulcers. Any long term, regular use of NSAIDS isn't good.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thanks. Lastnight and today, no pain meds at all. No aleve, advil, etc.. my neck is sore, when I swallow it is sore a little. But I, m managing it. Eating like a horse. Gaining weight is tough. Question, I had my neck cut from ear to ear. Is it normal for my jaw to be kinda numb? And a sore neck? Other than this, I feel pretty good.. peace to all.
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Nov 2009 Posts: 644 Likes: 1 "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts) | | "OCF Down Under, Kiwi" "Above & Beyond" Member (500+ posts)
Joined: Nov 2009 Posts: 644 Likes: 1 | I've had two neck dissections and both have caused numbness and neck pain/stiffness. Keep forgetting to do my exercises.
Sounds as if you are doing extremely well. Interesting what Uptown says about NSAIDs. I've always been wary of them for my mouth's sake but at the moment they seem to be the only thing that will deal to the toothache when it flares up.(Seeing dentist soon.)
1996, ovarian cancer surgery + cisplatin and taxol.
September, 2007, SCC of left lateral tongue. Excision.
October, 2009 recurrence in scar tissue, T1NOMO. Free flap surgery from left wrist - neck dissection. 63 year old New Zealander. No chemo, no RT.
February, 2014. New primary in left buccal mucosa. Marginal mandibulectomy, neck dissection, right arm free forearm flap. T1N0M0 but third occurrence and some areas of concern: RT started 8 April and finished 19 May.
| | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Aug 2014 Posts: 61 | Thanks. I took 1 advil today. Thats all so far. I have noticed my appetite is coming back, big time. I am a small guy, skinny. Always was.i bet im taking in close to 3000 calories a day, the last week. I have a boost in am, then eggs an pancakes. 2 more boost, and a pudding. Then dinner, noodles, mashed potatoes, taco, etc.? Then at night one more boost and a pudding. Then i use my feeding tube for 2 to 3 bottles of the nestle tube feeding formula, this is just to get extra calories... Do any of you notice it feels like your body is telling you, more calories, more nutrients... FEED ME?
Tongue Cancer
1/2 tongue removed, replaced by flap from forearm. April 15, 2014
neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone.
30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third
one. Finished up July 30,2014
Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer.
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Glad to hear your appetite is super now. Keep eating and drinking as you are. I'm guessing you can taste reasonably well since you are eating so well. How much taste did you lose and for how long?
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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