| Joined: Jun 2014 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2014 Posts: 38 | Howdy,
though I am technically out of treatment (less than a week), this message belongs here. Googling about "how to regain taste buds after radiation?" I came upon several suggestions that "zinc hydrate" is useful both during and after head and neck cancer treaments. Consulting my pharmacist, he steered me to Zinc Gluconate tablets.
Because I've had issues with tablets getting stuck, I use a mortar and pestle to grind this and two other meds. Then I either mix that with water and drink or mix into ice cream. I figured this gives a more topical application of the zinc to the buds themselves, perhaps a stronger dose than receiving it internally.
And every morning I've been having cereal with blueberries that I cannot taste. Weirdly, the day after the first zinc dose, while having cereal, I had one isolated note of strong blueberry flavor, then flashed back to "radio silence" or darkness on the palate.
I wondered if it was a brief placebo effect, or could I get that little neural flicker from one dose? Has anyone tried zinc to reawaken your taste buds after radiation therapy?
John D.
Head and neck cancer, Squamous cell carcinoma, HPV p16, Stage 3N (6/14) Occult origin; 58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14 1.5 years clear of cancer, at this point.
"This, too is part of Life's Rich Pageant!"
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I'm not sure you could definitively measure such a response to conclusively prove anything from a scientific perspective. I'm curious if knowing or not knowing that would be beneficial. Focus on what happened and pour everything into replicating the results. If you can make that happen, your taste will be improved. This might help understand the process and zinc was the only substance that withstood double blind trials still had mixed and inconclusive results. http://web.mnstate.edu/provost/Biol...inical%20Problem%20of%20Taste%20Loss.pdf
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jun 2014 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2014 Posts: 38 | I have had success with zinc for limiting duration of the common cold (you must start immediately when symptoms show, and continue dosing until symptoms improve). It would turn a ten day cold into a 4 day one.
I may fall short of scientific proof here, but that little flash of flavor was a godsend in that moment. It's one thing to be fairly confident taste will return. It was quite another to experience it, even if only for a second.
Head and neck cancer, Squamous cell carcinoma, HPV p16, Stage 3N (6/14) Occult origin; 58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14 1.5 years clear of cancer, at this point.
"This, too is part of Life's Rich Pageant!"
| | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | The doctor suggested extra zinc to perk up the testosterone which was down a little in the bloods. I haven't noticed any particular taste changes since I started taking it, but taste is recovering pretty well. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Before taking any meds, even over the counter supplements or herbal remedies always ask your doctor. Some things that are seemingly innocent can interfere with treatments and create some big issues. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | I'm sure interested. Try a blind experiment. Get someone to mash up several days of the tablets and something else like aspirin if the colors match. Then take one set and note any taste. Take the other set and record your findings. Then ask which was which. If nothing else, it will be something to take your thoughts somewhere else for a bit. :-) Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | You don't even have to go through all that, Don. The clinical trial said, in essence, it may help some and that's why oncologists suggest it. If it doesn't work within a month max, I would move on to something else. Nothing has been proven for anything regarding taste buds.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I have read what Uptown is saying. It may or may not help. I used to take zinc, pre-cancer, probably what OzMojo is using for to increase testosterone. I think I had more luck with clams, yohimbe extract lol. Also, I have read zinc can cause odd taste too, mouth ulcers, be toxic, so checking with your doctor, reading up on it is probably best.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | Fair enough. I guess if it makes you feel better take it, even if it is the placebo effect.
Candid camera is back. I caught a clip recently where they had folks take a puff of some marijuana and a puff of this really strong MJ. They were all acting high until told none of it was MJ. LOL
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | There's a lot to be said for the placebo effect. If you think it will help you, it often does. Particularly when it comes to fairly intangible things like energy levels. Taste is a particularly finicky thing during all this and your mind's attitude plays a big role I think. Bottom line though, run everything through your doctor. Two reasons, one to make sure its safe, and the other is to give the mind a firm basis to back the belief it will help you. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | My RO at Beth Israel suggested that I take 150 mg/day. All that I can say is that my taste is back to 100%. Can even eat spicey.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Did your RO mention how long it should take or when to stop taking the zinc?
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Feb 2007 Posts: 176 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Feb 2007 Posts: 176 | I don't remember exactly but I think that I took the 150mg/day for about a year or until my taste fully came back. Good luck.
6-05, Left Tonsil-T1N2bM0 stageIVA, chemo(Cisplatin), radiation(6660cGy), neck disection, no PEG. HPV negative. (Doc suspects posit) 3-9-09 last of 30 HBO treatments.
| | | | Joined: Sep 2014 Posts: 4 Member | Member Joined: Sep 2014 Posts: 4 | I am 3 years out = I remember I was told to take zinc, but with no explanation. So I still have the bottle I'd buy anybody got any I Dia if it would help at this point?
My page is sort of back but not really. And I'm still sensitive to spicy which I used to really love.
thanks,
Gregor | | | | Joined: Jun 2014 Posts: 38 Contributing Member (25+ posts) | OP Contributing Member (25+ posts) Joined: Jun 2014 Posts: 38 | I have been doing 50 mg of zinc daily since a few weeks after treatment. I am now about 4 and a half months since end of rads & chemo, and am getting some taste back. Sweet flavors were almost all gone, and fruit has not been appealing, but I would say now , I'm "knocking at the back door" of sweet flavors. There not here yet, but much better
Head and neck cancer, Squamous cell carcinoma, HPV p16, Stage 3N (6/14) Occult origin; 58 year old male 35 rads & 2.5 doses Cisplatin chemo 7/10/14> 8/25/14 1.5 years clear of cancer, at this point.
"This, too is part of Life's Rich Pageant!"
| | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | You sound like me. I am four years out and it's much better but still not great. ;o) and yes I took Zinc and it did help... have a great day
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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