| Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thank u uptown. I go to UPMC pittsburgh cancer center. They have been great so far. I see 2 of them next week. I will call them soon, I do know the one is away. It seems with this dry mouth I am sucking or puloing my cheeks in towards my teeth are a. Oh well, thanks again..
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Hi, I called my doctor, did not seem to concerned. He said if they are painfull, bleed, or white to call him back. He said he will see me tuesday. They serm to have gone down some. I just ate, they do not hurt at all. Thanks
ps.. he also asked if I am taking ibruprofin,. I told him I am taking aleve.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | I used to get them all the time before treatment, even, when I took Feldene, a COX1 inhibitor. I never got them from COX2. It was an allergic reaction that only came after,2 weeks on Feldene. They told me decades ago to stay away from all COX inhibitors but I still took Vioxx and Celebrex with no problems.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Ty. I noticed a weird taste in mouth, like mettalic taste. I also looked, and I was wrong. Today I am only 4 weeks out of radiation. So my mouth is probably still healing.ii might be aggrevating it... thanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Rinsing with a mixture of one cup warm water, 1 tsp baking soda and 1 tsp salt will help. I have to warn you the salt might burn your sensitive mouth. Its ok to cut back on it, just try really hard to get some manage using it with some in the mix. Do this at least 4 times per day. This is something many here have done to help with the mouth sores caused by chemo and rads. ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks I started that yesterday. See how it goes. This all seemed to start once I started eating and really doing my mouth exercises...
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | A neck dissection removes the pathways for lymph fluid. This is most likely the build up you're talking aboutl. Once you get a clean bill of health (post ct scan) then you might want to try and do lymphatic massage to clear out the fluid and build new pathways. Hugs and party on.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks Cheryld. So, I was looking around the net. I know, never use google. What I did notice was there was something swolle under my tongue, plus on both sides of cheeks. I never knew the salivary glands are all there. I had one remved from surgery on one side of face, plus radiation probably ruined the others. Once I starteded eating, I think they got swollen. They are trying to work, but may be clogged. Anyways, I have doctor appnt tuesday. The nurse said it sounds like ruined salivary glands, dry mouth, and me eating and using the muscles again... thanks and I pray for all.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | |
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