| Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks. I am only 4 1/2 weeks out of treatment. It just scares me. It was never there till I started eating and got the bad dry mouth at night. Ty
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Dry mouth, lack of saliva, can contribute to oral thrush. Everyone has, needs candida in the body, and just gets out of control when the body can't balance it effectively due to a compromised immune system, radiation, medications, etc. Besides seeing your doctors to properly diagnose, reducing foods that feed thrush, avoiding other irritating things to the mouth, gums, throat, such as hot, spicy, acidic and sharp textured foods may help. For a while even milk irritated my mouth, sugar/lactic acid, so I avoided that.
Last edited by PaulB; 08-26-2014 06:38 PM.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | I too have been drinking milk. They are not white now, its weird. Last week I went through pain med withdrawal. Lost some weight due to sickness. Started to eat saturday. Then these things show up...
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | Sounds quite normal in recovery...two steps forward, one to back, and the domino effect, but tell your doctors everything. You don't want to fall in any holes in the road to recovery that's difficult to get out of.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thank you. So these bumps sound normal? Feels like im biting them if I dont be careful. Right now im taking aleve, that is all for pain. I see my doctor a week from now. Should I wait? It feels like its a gland on each side, and then little ones around the 2...ty
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | I'm not a doctor, and can't say what it is or how things will progress. Doesn't hurt to ask for an earlier appointment for peace of mind, and if I ever thought enough of something it usually needed evaluation from my doctors, and also told then why did you wait lol. Btw, milk feeds thrush too.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Ok, thanks. I have been reading that we have a gland on each side of the cheek. If you can feel them, then they are aggrivated from eating, biting, etc... or they could be blocked. I know my surgeon removed one of my salivory glands. Ty
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jul 2012 Posts: 3,267 Likes: 1 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 1 | You have three major salivary glands, parotid, submandibular, and sublingual. There are also hundreds of minor salivary glands in the mouth, and throat. It can be from what you say or one of many other things, even a recurrence, although not likely, but that's why it's important you should tell the doctor, and be evaluated by them instead of trying to figure it out by yourself. I wish I could say its nothing, even if I thought so, but would not. All the best.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Ok thanks again. I will talk to doctor. Thank u.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | As Paul points out, any changes should be directed to your medical team at this point in your recovery. Even if you are totally freaked out and beg them to see you immediately, they will accommodate you. I can attest to that. They understand how different all this is and want to make sure there's nothing of concern as well. The good thing is they will explain things to help you calm down if it's nothing to worry about.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | |
Forums23 Topics18,169 Posts196,929 Members13,105 | Most Online458 Jan 16th, 2020 | | | |