| Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Hi, just wondering if I should be worried. I started to eat most by mouth now. I had my last radiation treatmnt 4 weeks ago. Is it normal for your neck to be sore? Like my muscles are hurting from not being used? Same with my throat? Since eating, it feels sore.mthanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Did you receive any physical therapy or have you been shown any neck exercises or even swallowing exercises for that matter? Pain will come and may go. Some have to do exercises daily for life.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks for the response. No, no physical therapy and no exercises. I have been doingmy my swallowing exercises. Once I started the excersises and eating, thats when I started feeling it. I also quit all my pain meds. I just take aleve. Thank
ps. Ihad a full radical neck disection also.
Last edited by beermanx; 08-24-2014 08:00 PM.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | You are at a good point to start some neck therapy.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Gotcha. I see my doctor next monday, I will get him to get me started. Thanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | I'm a year post and have a tightness in my neck where the rads hit the nodes. I do neck stretching several times a day to keep the area from tensing up too much. It does work very well for me.
It is just a bending to the side of the neck and looking upward. Just a few times make it loosen up. It does not reduce the size of the underlying scarring running along the neck but sure does stop the tightening up.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | I notice I get build up under chin and around adams apple. Like turkey neck, etc. Is this normal? Would this make things be sore and some pain? Thank you.
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | If the "build up" is a looseness of skin than it is as you describe "turkey neck". I did not have this but I do not recollect folks mentioning it hurts or is painful. Far more comments about it being a bit unsightly. Good luck
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | The turkey neck is from edema buildup from the lymphatic system damage or, I suppose, it could happen from surgery. It resolves but takes a while and lymphatic drain massage will help it get the big bulge quickly but not resolve it completely, in my case.
Don, is the "tightness" from a surgical scars! Does it feel like your sternocleidomastoid muscle doing a slow contraction? The contraction part is a good thing to indicate more stretching to get some blood flowing. Eventually, the muscles that do the slow contracting and alternating with instant cramps that creat big, painful knots are the muscles that atrophied first for me. Mine kept getting smaller till they turned to cords or strands with no elasticity left. With 18 months of hard work, I have been able to "revive" sections of the muscle.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Aug 2014 Posts: 61 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: Aug 2014 Posts: 61 | Thanks everyone. I called my doctor, nurse said thats all normal. Im sore from using muscles from eating and talking. I did help my son clean our pool filter, thought I was gonna fall over. Had to sit down 2 times. My heart was really racing. Is this all normal too. Last week I quit all pain meds. I am going through major withdrawal. Nurse said the weakness, dizzy, etc is from withdrawl. Does that sound right? Thanks
Tongue Cancer 1/2 tongue removed, replaced by flap from forearm. April 15, 2014 neck disection, 1 lympnode involved, doctors removed all to make sure cancer is gone. 30 rad treatments and 2 cisplatin chemo, doctor said I did not need the third one. Finished up July 30,2014 Chemo treatment was my choice. The board felt surgery and radiation was plenty to take care of my cancer. | | |
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