| | Joined: May 2010 Posts: 4 Member | OP  Member
Joined: May 2010 Posts: 4 | Hello Everyone, Hope all is going well. My questions is, I finished Chemo and Radiation treatments in Nov 2008. BOT & Lymph Nodes on the left side. In August of 2011 I needed 2 teeth removed, I did 30 HBOTs before and 10 more after the extractions, these were ordered by my ENT. I am now in terrible pain and need 5 more teeth removed, my ENT says not till I do more HBOTs. My Oral Surgeon who I need because of limited mouth opening and a well known, respected surgeon from the Cleveland Clinic says NO. He says once you do HBOTs, You are good for life, there is no proof that doing any more will do anything else???? Does anyone have any experience going thru this or can give me some input? Thank You all very much. Randy in Eastern Ohio
Diagnosis 5/22/08 High Grade Invasive SCC Base of Tongue
Left side Neck Lynph Nodes
T1N2M0
4 rounds Taxotere, Cisplatin, 5FU
35 Radiation Treatments W/ Carboplatin
Total of 70 Gray
40 HBOT in 2011 for 2 teeth Extractions
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | I have read that the effect of HBOT does last for some time afterwards, how long I am not sure. Some here have had the treatment so they will chime in. Welcome to OCF.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF! Ive done several rounds of HBO. My grand total is 215 dives! Why? Because they are only effective for short periods of time. The time frame probably is like everything else, it varies depending upon the situation and person. I know for certain that you need HBO again. If your oral surgeon insists its not necessary, in my opinion they arent the best qualified to treat OC patients. Please understand I do not have a medical background but I am very experienced in HBO. I am also a very cautious person, better to do the HBO to help ensure less of a chance of having osteoradionecrosis (broken/dying jaw bone) down the road.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | I did 30 HBOT in 2011 for a tooth extraction after 70Gy, bilaterally for tonsil, lymph node cancer. I need all my teeth extracted now, and in my 4th week of HBOT. I finish on Thursday, and scheduling my surgery with my CCC Oral/Maxillofacial surgeon upon his return from vacation. All my doctors at the CCC agreed I have to do HBOT. Other factors include the radiation dosage, I read anything above 60Gy, some say 45Gy, and depends on areas radiated, and teeth involved. Mandible is usually affected more by ORN than maxamilla. There is probably some debate if HBOT is effective at all, by some, but the risk is so devastating that HBOT is usually sided with. If root canal can be done, that may be preferred, and no need for HBOT.
Good luck.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | Randy,
I first time I had HBOT was in 2008 and was told by my doctors back then that is was good for at least 5 years.
I started having more dental issues in 2012, and needed some teeth extracted in 2013. Oral surgeon didn't think more HBOT was necessary, ENT did. Knowing all the potential problems that could happen, I was glad my ENT pushed for the HBOT.
After the dental extraction, the next step was a bridge. Oral surgeon had me wait at least 6 months before he would OK for work to start on the bridge.
It took about 4-5 months to finally get the permanent bridge installed. I am not really happy with it and having some other problems including a very painful tooth next to the bridge.
One option is to have that tooth pulled which I am trying to avoid. So I'm being really cautious what I eat and I'm still on pain medicine. It was just about one year after I finished the last round of HBOT when I started having problems with this tooth. Asked my ENT if I would need HBOT again, and he said yes! I didn't think it would be necessary again since this tooth was not on the side that received radiation, but I was told that the blood supply is still compromised on that side.
It seems the medical folks cannot agree on what to do. With 5 teeth involved, it is probably a good idea to do the HBOT again.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2016 Posts: 75 Likes: 2 | Hi Randy, I had three teeth extracted and definitely needed HBO treatment, healing is coming along very slow. But I would do it again if I needed it and Christine has been through a lot. Make sure the doctors are very knowledge with cancer, radiation and ORN, good luck, Michele
SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Keep in mind, HBOT is also an excellent treatment for radiation induced fibrosis as well. A big plus.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: May 2010 Posts: 4 Member | | OP Member
Joined: May 2010 Posts: 4 | Thank You everyone for your input. My ENT and Oral Surgeon had a conference and decided that I will have the HBO Treatments. Will start on Thursday 8/28/14
Best Regards Randy
Diagnosis 5/22/08 High Grade Invasive SCC Base of Tongue
Left side Neck Lynph Nodes
T1N2M0
4 rounds Taxotere, Cisplatin, 5FU
35 Radiation Treatments W/ Carboplatin
Total of 70 Gray
40 HBOT in 2011 for 2 teeth Extractions
Diagnosis 5/22/08 High Grade Invasive SCC Base of Tongue
Left side Neck Lynph Nodes
T1N2M0
4 rounds Taxotere, Cisplatin, 5FU
35 Radiation Treatments W/ Carboplatin
Total of 70 Gray
40 HBOT in 2011 for 2 teeth Extractions
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Glad to see this update! I was concerned about the one physician advising about skipping HBO. They sure are a pain in the butt taking up so much time but its definitely worth avoid other bigger risks.
Good luck!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | | Supporting Member (50+ posts)
Joined: Apr 2016 Posts: 75 Likes: 2 | Question: what is induced fibrosis? Thanks Just trying to be informed, Michele
SCC 2005 floor of mouth and neck disection
SCC 2009 partial rt tongue RAD
PEG 2009
20 HBO treatments following surgery of three teeth and 10 more HBO to follow
2015 Diced food diet due to weak muscles long term effects of radiation
2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
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