| | Joined: Feb 2008 Posts: 14 Member | OP  Member
Joined: Feb 2008 Posts: 14 | Hi, My dad has Stage 3 oral cancer which has moved to his chest area. The Dr. has said he canot have anymore radiation or surgeries. Chemo with Afinitor are his two options. Afinitor is not covered by Medicare. Does anyone know where I can get financial assistance for this drug? Thank you!
Dad had scc inner cheek, mod rad diss, 24 rad, 2 chemos, 2 blood and platelet transfusions...praying that CT scan comes clear..
| | | | | Joined: Feb 2008 Posts: 14 Member | | OP Member
Joined: Feb 2008 Posts: 14 | Since my initial post he has had 4 surgeries, 6 chemos and 30 radiations
Dad had scc inner cheek, mod rad diss, 24 rad, 2 chemos, 2 blood and platelet transfusions...praying that CT scan comes clear..
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | I suggest getting a second opinion right away at a top comprehensive cancer center (CCC). Take all the medical records and try to get an appointment ASAP. Chemo alone will not eliminate his cancer. Sorry, Im not familiar with Afinitor. Try contacting the company directly.
Best wishes!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 |
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Feb 2008 Posts: 14 Member | | OP Member
Joined: Feb 2008 Posts: 14 | Thank you for responding! We did get second opinions an dvoth said chemo and affinitor may help slow down the cancer.
Dad had scc inner cheek, mod rad diss, 24 rad, 2 chemos, 2 blood and platelet transfusions...praying that CT scan comes clear..
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | This sucks and I am very very sorry. It's very hard to treat when it's in the chest, but try not to give up hope. Do get a third opinion if you feel the need, comprehensive cancer centers do offer one thing others don't - ready access to a variety of clinical trials.
Also there is DNA matching that can be done. If they biopsy the area and send the sample to California, they can test the sample against different chemos to see what will be most effective. Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2008 Posts: 14 Member | | OP Member
Joined: Feb 2008 Posts: 14 | Thank you Cheryl...I will contact a CCC now.
Dad had scc inner cheek, mod rad diss, 24 rad, 2 chemos, 2 blood and platelet transfusions...praying that CT scan comes clear..
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