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| Joined: Mar 2014 Posts: 286 "OCF Down Under" Gold Member (200+ posts) | "OCF Down Under" Gold Member (200+ posts) Joined: Mar 2014 Posts: 286 | Congratulations! Its a great milestone to have behind you. As others have said its important to maintain the nutrition and hydration and keep an eye on changing symptoms. Its easy to feel disconnected from medical help when you don't see them every day, but you should call them to discuss any changes. Things will get worse before they get better, thats just part of the process. But its all about healing now, no more trips to the hospital for a while. Well done to both of you. Cheers, Dave (OzMojo) 19Feb2014 Diagnosed T2N2bM0 P16+ve SCC Tonsil. 31Mar2014 2 Cisplatin, 70gy over 7 weeks (completed 16May2014) 11August2014 PET/CT clear. 17July2019 5 years NED.
| | | | Joined: May 2013 Posts: 188 Likes: 4 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 188 Likes: 4 | Congratulations as well! Savor the moment but keep the seatbelt fastened. In some ways a tougher leg of the journey starts but you are closer your destination too. Some important steps have been laid out above and wisdom says to follow the advice. You will see progress if you look for small improvements rather than monumental ones. I would measure progress by eating an extra bite or going outside for a few minutes or not feeling so fatigued for that day. Please reach out to the group with questions and concerns. We are with you on the journey.
Age 55 HPV 16+ SCC, BOT 050613 Stage IV great team at OSU Tx 6 weeks of rad started June 3 8 weeks of chemo started May 28 RTOG Phase III trial Cetuximab group. Treatment completed 7/16/2013 PET Scan completed 10/08/13 Results discussed 10/11/13 NED - Free but am I Next part of the journey? 1year PET 10/24/14 NED Good reports now 10 years out. | | | | Joined: May 2014 Posts: 56 Supporting Member (50+ posts) | OP Supporting Member (50+ posts) Joined: May 2014 Posts: 56 | Thanks guys for the information like I said before this site has helped me in so many ways ,,in being the caregiver for my husband I'm really glad to hear this rope mucus will go away in a few weeks ... I will try some of the mentioned liquid meds also their was a strong med recommended by a nurse but it took a prescription to get it and we haven't been back to the dr.yet we go back on the 17th July I will ask for it if still needed ..
Larry ... Rt tonsil / SCC.. HPV16 positive RT oropharynx tonsil) lymph nodes were 13mm left level 2 node / 16mm right level 2 node /12mm right level one node... pet scan was good except tonsil & nodes,, just got peg placed still able to eat/swallow undergoing rads) and chemo. ) 70gy rads.. 2chemo.finished rads July 8/2014 CT Scan clear on 8/12 pet scan October-2014-Clear/ left ear tube placement 12-15-2014
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