| | Joined: Jun 2014 Posts: 56 "OCF across the pond" Supporting Member (50+ posts) | OP  "OCF across the pond" Supporting Member (50+ posts)
Joined: Jun 2014 Posts: 56 | I've been looking the last Census, particularly the statistics for oral cancers. There has been an alarming increase since 1995. For specifically tongue cancer, per 100,000 cases of cancer, the results have almost tripled in males and double in females. Why? Smoking in the UK has plummeted, and chewing tobacco is rare over here. I've never seen anyone chew tobacco and I've never seen it on sale either. I think alcohol consumption has increased, especially in young people. Times are hard for our youngsters, these days, I feel. it just breaks my heart that more people are having to go through all this. And yet it's STILL a 'Cinderella Cancer'. Here is the link; as I say, it makes interesting reading. As an aside, I was training to be a nurse during the last Census, and I was employed as a Census Collector to get some extra cash  It is one of the most fascinating jobs I've ever done Tables 8 and 9 give the figures I'm on about.... Click once on the FIFTH link down on the left, then click on 'tables 8 and 9' in the text on the right. http://www.ons.gov.uk/ons/dcp171778_367563.pdf
Mar 99 white patch tongue
Dec 11 white patch changed shape. biopsy neg
Sep 13 white patch ulcerated. Biopsy
Nov 13 diag Tongue SCC T2N2BM0 poorly Differ.
Dec 13 Hemigloss. neck dissect.Trach.Caldwell Luc (suspect cysts inside face, neg), teeth out. forearm flap, abdo graft
Feb 14 PEG tube
Feb/Mar 14. 30 x radio 60gy Grade 3 Mucositis, burns, hair loss, very ill. Nerve damage ear neck shoulder
Jun 14 *now* PEG out. Have lost 98 lbs in 1 yr. Anorexia. Dysphagia, liquids only. Dysphasia. Fatigue.
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Hi Estelle - I haven't read the pdf yet, but I expect HPV-16 is the big cause in the increase. As I hear it, oral cancer is near epidemic in nature now and still not getting the attention it deserves. As the number of cases increase over time I expect the news will start getting out
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,260 Likes: 3 | She said tongue cancer though... Which is generally not HPV related - I have certain theories abut the why - not alcohol related.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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