| | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) |  Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | That's great news, Brian. Thanks a million.
Andrew, I've been using something called The Natural Dentist Healthy Teeth & Gums All In One Fluouride toothpaste (a... um... mouthful of a name). I showed it to my hygienist, who is also a DDS herself, and she said it was fine. Believe I got it on Amazon as well, you might have a look until Brian's new formula is ready to roll.
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2008 Posts: 117 Likes: 1 | [quote=David2]I've been using something called The Natural Dentist Healthy Teeth & Gums All In One Fluouride toothpaste [/quote]
I'm glad you mentioned this. I bought a different one from the same company. But yours looks better. And great news from Brian. The toothpaste is the most important part.
I might as well post comments on other products. I've tried mouth rinse from Bioxtra and Rite Aid. The Rite Aid has a stronger mint flavor, which I think is a disadvantage. But the Rite Aid is not so strong I cannot use it. The Rite Aid comes in a squeeze bottle, which I like. The Bioxtra you pour into a little plastic cup they include. Rite Aid costs less.
I also got the oral gel from Bioxtra. It's okay. It coats the teeth. But it disappears more quickly than I'd like. But right now it's the best thing I can find.
And I got the spray from Rite Aid. It's gentler than old Biotene.
As for the Bioxtra toothpaste, it stings my mouth. I have to rinse with water right away.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Great news Brian!
It is pretty amazing to think an effort by a very small entity could get a product to market so quickly and on the mark! Kudos to you and OCF!
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Do their new products include the gum?
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2011 Posts: 945 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2011 Posts: 945 | Great to hear the toothpaste is coming. Thanks much, Brian!
Maria
CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
| | | | | Joined: Apr 2008 Posts: 117 Likes: 1 Senior Member (100+ posts) | | Senior Member (100+ posts)
Joined: Apr 2008 Posts: 117 Likes: 1 | I was told by my periodontal office that USC school of dentistry had a staff meeting to discuss what to do about the Biotene issue. The sentiment was the Biotene products are no long suitable, and other solutions need to be found. So it's not just us patients who are concerned. And it won't be long before GSK has to stop claiming Biotene is the number one recommended brand.
Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
| | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 756 Likes: 1 | I don't recall ever seeing commercials on TV for Biotene until after they changed the formula. I hope this hurts GSK big time financially! Unfortunately many folks don't know about the change and I've seen some doctors still recommending it. I do my best to educate my doctors about the change. I'm glad to hear USC school of dentistry is aware - need to get the medical community informed and involved. Thanks for posting this.
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I just received a letter from GSK advising me that they will no longer mfg the Biotene Gum. They also gave me a $1.00 off coupon. WOW I feel so much better now.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,409 | It IS the little things, isn't it, D1? Given your profession I'll leave it up to you to figure out what a buck off something that doesn't exist anymore comes to. Me I'm just happy if I finish my peanut butter sandwich and the comics at the same time. (with plenty of water to be sure!)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | I hope you share the coupon with all of us, David.
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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