| | Joined: May 2014 Posts: 56 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: May 2014 Posts: 56 | I have a question hoping I'm posting in the right forum
What is the best way to mix and use this I don't think we're mixing it right it's having no effect on my husband today is bad he not able to swallow water very good he's trying please any information as what steps would should be taking to make this work or does it work ?
Larry ... Rt tonsil / SCC.. HPV16 positive RT oropharynx tonsil) lymph nodes were 13mm left level 2 node / 16mm right level 2 node /12mm right level one node... pet scan was good except tonsil & nodes,, just got peg placed still able to eat/swallow undergoing rads) and chemo. ) 70gy rads..
2chemo.finished rads July 8/2014 CT Scan clear on 8/12 pet scan October-2014-Clear/ left ear tube placement 12-15-2014
| | | | | Joined: May 2014 Posts: 56 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: May 2014 Posts: 56 | It's the regular magic mouth wash just not sure how to mix this should it be used warm or cool? How much should he swish and spit can it be swallowed and should it be made up and used over several days and how many times a day can it be used???
Larry ... Rt tonsil / SCC.. HPV16 positive RT oropharynx tonsil) lymph nodes were 13mm left level 2 node / 16mm right level 2 node /12mm right level one node... pet scan was good except tonsil & nodes,, just got peg placed still able to eat/swallow undergoing rads) and chemo. ) 70gy rads..
2chemo.finished rads July 8/2014 CT Scan clear on 8/12 pet scan October-2014-Clear/ left ear tube placement 12-15-2014
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | Depends on what in it. Ask the pharm or doc re swallowing. I couldn't tolerate cold or hot, everything had to be room temp. Re how much, just enough to swish and gargle with. I used it right before I wanted to swallow liquids or food to take the edge off the pain.
Put some dates in your Signature line so we can track his weekly progress without having to go back thru posts.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Prescription magic mouthwash (MM) can be made of several different combos. It is available thru a prescription at the pharmacy and isnt something you would be making yoruself at home. Mine was benedryl, lidocaine and maylox and it could not be swallowed. Other formulas may be ok to swallow. However, if swallowing it will numb you all the way down making the possibility of choking much greater. Ask your doc for detailed instructions on how to use the MM that is prescribed and what it contains.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Christina is right - the MM containing lidocaine or similar is the version not to be swallowed. You can swish it around quite a bit.
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | |
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