| | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) |  Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | I bought one of these. will add more once I get it. http://www.caregiverproducts.com/g-tube-belt.html
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Feb 2014 Posts: 2 Member | | Member
Joined: Feb 2014 Posts: 2 | I ordered my husband two of these and he didn't like them so if you message me your address I will mail them to you...he ended up using a baby band for pregnant women..it worked amazing! | | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | After using it for a few weeks I didn't like it. The elastic kept slipping down and putting pressure on the peg tube. I've gone back to 2"X2" Avant drain sponges and tape but I use Sureprep and that takes a lot of the sting out of using paper tape all the time. It looks like an alcohol prep but its like a varnish and acts like a buffer between the skin and the tape. The tape sticks well but doesn't tear out my skin.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jul 2007 Posts: 939 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jul 2007 Posts: 939 | We found that a wide Ace bandage worked very well...not the rubbery self stick kind but the soft kind meant to wrap a knee, etc. You do need a caregiver to help wrap it around the abdomen but with the little clip toward the back, it stays put all day and the tube can be slipped in and out from under it.
Bill could not tolerate the tape after one week so we tried this and used it till the PEG came out. I bought several so I could launder them. WORKED GREAT!
Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!
Passed away 1/7/17 RIP Bill
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Thanks! Cheap enough and worth a try. The Sureprep has taken the pain out of using paper tape however. I leave the tape on the peg when I shower to protect it. See: http://www.medline.com/jump/product/x/Z05-PF46676# (Cheaper to buy it through Amazon) I can relate to what you're saying though, the tape was a major pain in the beginning until I found this stuff (actually the home care nurse ordered a box for me and until I read the label , thought it was an ordinary alcohol prep. ;-)
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
________________________________________________________
"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | I just let it all hang out lol. In the beginning I used tape, but found that to be irritating to my skin, so I use nothing, and comfortable with that. I don't use a pad under or over the stoma finding that may harbor bacteria. My CCC used tubular elastic net bandage, which you cut to size, slip over your head to your stomach to hold the tube whatever position, and that was comfortable and didn't feel restrictive to me, so I used that for a while. They come in different sizes.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Aug 2014 Posts: 23 Member | | Member
Joined: Aug 2014 Posts: 23 | Thanks for the tip, very good one! Saw this. http://www.exmed.net/p-2003-nu-hope-carefix-fabric-ostomyurology-pouch-support.aspx?Defaul on fishmanpa's post from January on this thread. It arrived today and was an instant hit. It is comfortable and feels much better than the way the nurse at the endoscopy clinic set him up (stuck tape to the tube put safety pin through tape and pinned it to the inside of his t shirt).
Caregiver to husband with SCC BOT HPV+ T4N2cMO stage 4a
CT scan 7/23/14
Biopsy 8/7/14
PEG tube in 8/15/14, out 4/2015
35 rads, Cisplatin X 3 - finished 10/27/15
cancer free May 2018
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Glad to hear something is working out!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Nov 2002 Posts: 458 Platinum Member (300+ posts) | | Platinum Member (300+ posts)
Joined: Nov 2002 Posts: 458 | I had a bunch of T-shirts with pockets on them. Just took a couple, cut a slit in the t shirt just below the top of the pocket. Pull the tube through that, coil it up and stuff the tube in the pocket. Usually I wear some sort of long sleeve shirt or sweater over that so it's not particularly noticeable. Still have easy access to the tube for feeding, and it's out of the way otherwise.
SCC Tongue, stage IV diagnosed Sept, 2002, 1st radical neck dissection left side in Sept, followed by RAD/Chemo. Discovered spread to right side nodes March 2003, second radical neck dissection April, followed by more RAD/Chemo.
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