| Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,293 Likes: 1 | [quote]PS... highly recommended.... . a chocolate/peanut butter porter that's like drinking a Reese's Peanut Butter Cup... Paired with a piece of pumpkin or pecan pie and it's a no brainer! Mmmm smile[/quote]Well, sounds like the new "normal" for you! I can do porter but not if it tastes like a candy bar. LOL
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Mar 2013 Posts: 421 Likes: 1 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Mar 2013 Posts: 421 Likes: 1 | It's called "Sweet Baby Jesus". A chocolate/peanut butter stout that's more of a dessert beer than one to drink watching the game on Sunday but truly a wonderful experience. Here's my review:
Sweet Baby Jesus � DuClaw Brewing Co., Baltimore, MD
This porter beer pours thick and is a prelude to what follows. You can smell the chocolate and peanut butter as you pour it and it has a bit of hops and the malt you would expect of a porter. The taste?...Very chewy for sure! It�s like a dark chocolate Reese�s Peanut Butter cup in a glass. More a dessert beer than an everyday drinker but just plain sinful all around! Serve this with a spice pumpkin or chocolate pecan pie and it�s a no-brainer. 6.50%ABV
One more to try...
Breakfast Stout � Founders Brewing Company � Grand Rapids, MI
Wow! I have to thank Coe at the Woodstock Caf� for this one. I asked for a �chewy� dark beer and this was his recommendation. The label is cool so that�s a good start. This beer pours thick with a beautiful head and exquisite lacing. The aroma was heady with coffee, chocolate and malt overtones. The longer it sits and breathes, the better the aroma. The taste? What�s not to like? Everything and more than what you expect from what I consider the perfect stout. Coffee up front and a sweet chocolate aftertaste that just begs for another sip. At 8.30ABV you better be careful or you�ll stumble upon trying to get up from your chair after 2 of these!(experience speaking). In my college days this would have been the perfect brew with cold pizza in the morning after a night of touring the frat houses! (Warm or chilled). If this was available back then I�d be wondering if I had a few unaccounted for children in the world ~lol~ 5 star! Thanks Coe! Positive thoughts and prayers
57 Cardiac bypass 11/07 Cardiac stents 10/2012 Dx'd 11/30/2012 Tx N2b MO Stage IV HPV+ Palatine Tonsillectomy/Biopsies 12-21-12 Selective Neck Dissection/Lingual Tonsillectomy/biopsies TORS 2/7/13 Emergency Surgery/Bleeding 2/18/13 3/13/2013 30rads/6chemo Finished Tx 4/24/13 NED Since
| | | | Joined: Sep 2013 Posts: 40 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2013 Posts: 40 | I've been struggling with the question of whether to have a few drinks now and then or not at all. A few of my doctors told me I shouldn't drink at all, some said in moderation. I am HPV- with unknown primary which leads me to believe that my OC had a good chance of coming from my previous alcohol consumption (3 or more drinks just about everyday for the past 40 yrs.) It sure sounds like an awful lot and really is but, I'm quite healthy ( except for the OC ). I've had a few drinks now and then since the completion of my treatment but, I just can't get over the thought of having another bout with OC because I wanted to drink again. So I have decided to quit completely. I loved my cocktails, and this will be hard to do. Whether alcohol was the cause is just my opinion based on my own research. It's just not worth the risk for me.
Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | Calhoun, I went through the very same thought process. I had not yet started my first treatments when I read (courtesy of Google) that 70% of patients who did not quit drinking when they were diagnosed, had recurrences.
Like you, having just heard a litany of horror stories concerning the treatments I was about to undergo, I finished the drink I was working on (2 oz of 9 year-old Knob Creek over 4 ice cubes;) rinsed my glass and had 2 oz of Black Seal dark run, and quit drinking.
Then, just over a year later, I had my first (of 5) recurrence which was a distant metastasis in my liver.
Well shoot, now that I did have a recurrence, I asked my MO if it made any difference whether I resumed drinking or not. He laughed and confirmed that the horse was out of the stables and there was nothing to be gained by resuming moderate drinking.
I am currently finishing a cup of coffee, sweetened by an Oz of Knob Creek 9 year-old.
Trust me, it is with nothing but brotherly love and compassion that I say that I hope you never have the same opportunity to have another drink. But if you do, enjoy it to the fullest!
Bart
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | I too made the decision to take the advice of the one of my oncologists who said not to drink. The other said it was okay in moderation. But I figured better safe than sorry. At this point it's been at least 4 years since I last had a drop and although from time to time I think about it, on balance I'm good with my decision.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | One downside of alcohol is the vagal neuropathy many of us acquire. Alcohol is potentially a trigger for some episodic excitement. I had some Cream de Cassis last Sunday night and have been barely able to breathe all week, forced to do constant breathing treatments.
Viva the vagus
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Sep 2013 Posts: 40 Contributing Member (25+ posts) | Contributing Member (25+ posts) Joined: Sep 2013 Posts: 40 | Thanks for your thoughts Bart, David2 and Uptown. I'm fine with my decision. I had a lot of good times with drink and a lot of bad. Never could get a handle on that moderation thing. Whether I caused a recurrence remains to be seen. It's time for another PET soon. At least I still have my opiates for now. I guess I'll have to follow Huey Lewis's quest. Thanks again.
Age 54 at DX 06/20/13 Left Neck Mass 07/11/13 DX SCC OC T0N2bM0 Stg IVa p16 neg. 08/09/13 Tonsilectomy and Adnoidectomy, Panendoscopy. Unknown Primary. Begin RAD 09/30/13 Cisplatin 10/01&22/13 PICC 10/21/13. PEG 10/25/13 to 1/24/14. Erbitux x 3. End 35 RAD 11/22/13 Clear PET 02/25/14
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