| Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | HPV is a sexually transmitted disease. It is also potentially transmittable via oral sex. Warts are a form of HPV. We get them on our hands and feet by simple contact. They are not necessarily the same strain as the OC or Anal, cervical cancer strain is, but it is a form of it. There area lot of unknowns. Unless you are completely celibate, and a virgin, with history of NO sexual play ( we all know that you don't have to actually have SEX to get a STD ) they you have faced potential exposure, so it isn't confined to a certain type of behavior. If your partner is the only person you've ever been with, or you've only had standard missionary sex once in your life, you still have been open to exposure - even with protection (I say this because an open sore can exist even outside the area a condom covers. hope this helps somewhat - though I suspect I may have just muddied the waters. hugs.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2014 Posts: 22 Member | OP Member Joined: May 2014 Posts: 22 | Thank you! I had a great talk with my Dr. He explained my situation well. My mouth has changed alot as I finish week three today. I was told to take robatusin for mucus. I have a special mouthwash and liquid hydrocod. Man that stuff works good!! . What type of protein substitute should i use for replacement or will peg food cover my needs completely? my weight is still constant but i feel a few inches coming off the belt. vg
| | | | Joined: May 2014 Posts: 22 Member | OP Member Joined: May 2014 Posts: 22 | | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | I personally am a vegetarian - so I go for the non whey based proteins made from ancient grains etc. They have no sugar added. You need to up your protein to help promote healing. A health food store should have a variety of powdered protein. One scoop even added to an ensure will help. Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Be aware extra protein can contribute to loss of appetite. There is a great vegetarian protein made by Vega Sport. About 25 grams a scoop. Your body may not benefit beyond about 26 grams every couple of hours. Best to stretch that out if possible.
Also, if the Robitussin burns to much ask specifically for Siltussin SA. It has the same ingredient you need, guafenesin but it is mostly for diabetics and folks with sore throats with no alcohol or sugar. Prescription only.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: May 2014 Posts: 22 Member | OP Member Joined: May 2014 Posts: 22 | I have had some issues finding anything that does not taste like metal. We went to panera bread and the only thing that looked good was the kids meal butter on pasta. All that great food and bread and knowing i can't eat it. I got my samples of peg food. I guess I will try that tomorrow. I went walking with my wife at the shopping centers just three hours and i completely ran out of gas. I have a few things still to work out!! sorry for this rambling. Got some quiche for dinner and I was able to get it down. little victories!!!! | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Treasure those little victories! You will find many along this journey. It's odd how everyone has pretty common things going on with taste but each of us are different. For me, it was cardboard. It still is for chocolate most of the time, 11 years later.
Same with the running out of gas. It's like walking carrying something on your back and each week someone's adding weight for some and nothing for others.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Vernon, even if the food doesnt taste like it should its still a good idea to keep trying to eat by mouth. I know its not easy to eat things that dont taste good. By continuing to swallow all the way thru treatments will do wonders in helping you later when its time to recover. The swallowing function if not used will quickly forget how to work correctly.
Hang in there! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: May 2014 Posts: 22 Member | OP Member Joined: May 2014 Posts: 22 | Thanks just having down day! Today is a new day!!!
| | | | Joined: May 2014 Posts: 22 Member | OP Member Joined: May 2014 Posts: 22 | Thanks I am sure things will get better. The first three weeks went so well it took me back when things changed so much, The chemo day on wed. kind of makes the metal thing happen mostly to Thursday. This week it stayed with me a few more days. I just need to adjust what i do. You guys are great! Thanks again. | | |
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