| | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | OP  Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | I'm doing a long bike race this year in June and I'd like to spread the message about oral cancer and its breadth of effect. I'd especially like to highlight the disparate groups of people that are effected by oral cancer. I was thinking I could produce custom bike shorts that have either the OCF logo or some type of oral cancer message on them. Hopefully, they would serve as a conversation starter and I could hopefully educate a few more people about oral cancer.
A couple questions:
1. Does OCF have any issues with my use of a logo or slogan?
2. If not, could someone point me in the direction of some high resolution logos/slogans/graphics (if available)?
3. Any suggestions on the content/message present on the biking shorts?
Thanks so much. Looking to give back and spread awareness!
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | You will need permission before putting the logo on anything. Please contact Susan Lauria who is OCF's events coordinator. She will be able to answer all your questions. I will PM you her email address. You may also contact either Jamie or Natalie at OCF's office in Newport Beach, CA. Here is the link to OCF's office phone number. Thank you very much for your efforts in spreading oral cancer awareness!!!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | It's 132 miles over 1 day. The website is www.b2vtride.com. It's a ride I did in 2010, 2011, and 2012 but had to skip last year due to treatment. The course and format changed a bit this year. It is a bit shorter but more hilly this year. Would love to take a ride with you if you were in the ny area. I'm sure you would kick my butt. 9hrs of spinning..thats impressive! Keep up the good work!
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | That's quite a feat! Good luck on your ride Andrew!
And yes, doing 9 hours of ANYTHING is a great accomplishment, David! I'm still amazed. Great job!
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| | | | | Joined: Mar 2014 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2014 Posts: 34 | That is awesome that you are going to do this! Good luck on the ride!
Last edited by kfisher; 05-05-2014 07:20 PM.
3/2014: 25, no risk factors (nonsmoker, rare drinker, HPV negative) SCC right lateral tongue, T1N0M0 - well-differentiated; surgery - removal of tumor, salivary gland + neck dissection
11/2017 - ovarian torsion
12/2018 - basal cell skin cancer
| | | | | Joined: Feb 2013 Posts: 78 Supporting Member (50+ posts) | | OP Supporting Member (50+ posts)
Joined: Feb 2013 Posts: 78 | Thanks!
Katherine, sorry to see another member of the young oral cancer club here. Hope you are doing well and healing up!
Andrew
age 25
early 10/12 - enlarged lymph node area
01/13 SCC of L tonsil, L BOT, 2 L lymph nodes
stage IVa, T2N2bM0, HPV+
2/13 2 doses cisplatin big bag, 2 doses weekly cisplatin + 35x IMRT
4/13 TX finished
7/13 PET/CT - NED!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | 132, that's a back breaker! The last Century I did was 104 miles with 64 of those ALL HILLS. I had nightmares about hills for weeks...lol
At 25 I doubt I would be the one kicking someone's butt.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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