| Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | Has anyone acquired strep throat after having throat cancer?
I had bilateral tonsillectomies with positive cancer on the left in August of 2012.
I had a cold, which come along with a sore throat, but now the cold is better (almost gone) and my throat has gotten worse.
I just looked in the mirror and I can see white patches in the back of my left side. This is the same side as my cancer. I'm starting to freak out a bit.
Should I contact my doctors on Monday?
~Kerri
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Oct 2013 Posts: 559 Likes: 1 | You probably should see your doctor as it looks like an infection. However, at this point I wouldn't assume it's strep. I've had multiple bouts with throat issues that looked like infection both during and after treatment (which ended 5 months ago).
They have cultured it (and nothing grew) showing it's not bacterial (ie it's viral). They have said the viral just has to run it's course as there isn't a lot available to treat viral infections with. In all instances, give it a week to ten days and it's been gone (for me).
I have also been told that at the surgery site (I only had one tonsil removed) you can expect white puffies that look like infection for awhile. Your's being two years ago worries me a little more than mine (5 months) does, another reason to discuss with the doc.
I hope this helps Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0. 11/13 start rads, no chemo 12/13 taste gone, dry mouth, 02/14 hair slowly returning 05/14 taste the same, dry sinuses, irrigation helps. 01/15 food taste about 60% returned, dry sinuses are worse in winter. 12/20 no more sinus problems, taste pretty good
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Kerri,
With the immune system roller coaster ride for a while after treatment, you need to get it checked by a doctor. One if the dangers if strep is the body's natural immune response creates antibodies that cause things like RA, scarlet fever, rheumatic fever. They all are permanent lifelong problems. Identification of strep is important and maybe one of the easiest things to treat.
When in doubt, consult with a doctor. You are reaching the point of looking for a family physician if you don't have one. Many don't like to deal with after effects of treatment but at some point, oncologists don't manage the day to day.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | See your doctor on Monday. It can be a number of oral conditions or infections, which can be bacterial, fungal or viral origin, and would need proper medications to treat. Strep throat can be bacterial, but there are viral ones too, and white patches in the mouth can be thrush, a fungal infection, or combination of infections, and in the throat thrush is esphogitis, can go to the stomach, become systemic from there into the bloodline, which is then invasive or dissemintared candiasis, which has a high rate of failure, the same with strep throat, can go to the lungs, become systemic too, and be more difficult to treat.
Good luck
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | hey everybody, I hate that the stuff always seems to happen over the weekend. I just went to the local urgent care center in my rapid strep came back negative. They're sending it out for a routine throat culture. I am having a bit of a freak out. They're going to put me on augmentin. I saw a PA, and she said that I had someone millimeter ulcers in my throat and I have an ulcer on my tongue right in the middle.
I sent a message to my med once fellow, as I have her email.
I hope it's nothing serious.
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Mucocitis causes ulcers too, as well as other oral conditions, some quite common with treatment, but you're doing the right thing by keeping on top of it, visiting urgent care, and letting your treatment team know. You had me laughing, not thats its it's funny, but ironic, everything seems to happen at night and on weekends! That's why I keep an arsenal of meds ready lol. Good question everyone should ask the treatment center, who do I contact off hours? I had a list of numbers for chemo, but not always or everywhere I was treated. If in doubt, there is always the ER.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | Thanks, Paul. I'm so sorry that you've had so much trouble, after reading your signature. I'd call the on-call at the cancer center, but I'm sure there's not much they could do until they see me. The one who is on-call doesn't know me.
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Nov 2013 Posts: 104 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Nov 2013 Posts: 104 | If you have dry mouth, I'm guessing oral thrush(candidiasis)... I just went thru this, looked like I had cottage cheese growing in my throat, onset was almost overnight,4
Brian Stage IV TxN2aM0 HPV+ SCC 38 y.o. male 9/20/13 Sentinel Node Found 12/5/13 Start of 72Gy and 5 bags of Cisplatin 1/21/14 Treatment Ends 1/25/15 1 Yr clear
| | | | Joined: Aug 2011 Posts: 596 "Above & Beyond" Member (500+ posts) | OP "Above & Beyond" Member (500+ posts) Joined: Aug 2011 Posts: 596 | Brian,
I do have dry mouth, despite constantly drinking water.
It has worsened today and aside from the ulcers, my tongue does seem to be turning a bit white. The pain is nearly or just as bad as when I was in treatment. I'm taking methadone, oxycodone, and motrin and it still makes me wince every time I swallow.
I will be calling the cancer center first thing in the morning.
37 y/o fem at Dx (23 wks preg @ dx on 3/16/11) SCC L oral tongue (no risk factors) L partial gloss/MND 3/28/11 @ 25 wks preg T1-2N0M0; no rads/chemo Tonsillectomy on 8/6/12 +SCC L tonsil T2-3N1M0 (HPV-) Treated with 35 rads/7 carbo & taxol (Rx ended 10/31/12), but many hospitalizations d/t complications from rx. Various scans since rx ended are NED! Part of genetic study for rare cancers @ MGH. 44 years old now...I wasn't sure I would make it! Hoping for 40 more!
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | The white makes me think its thrush. That can be very painful. Get yourself checked out today and start on some meds. Feel better!
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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