Previous Thread
Next Thread
Print Thread
Page 13 of 20 1 2 11 12 13 14 15 19 20
Joined: Jul 2009
Posts: 1,409
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
That's great news, Brian. Thanks a million.

Andrew, I've been using something called The Natural Dentist Healthy Teeth & Gums All In One Fluouride toothpaste (a... um... mouthful of a name). I showed it to my hygienist, who is also a DDS herself, and she said it was fine. Believe I got it on Amazon as well, you might have a look until Brian's new formula is ready to roll.


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
David2 #182005 05-28-2014 02:09 PM
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
[quote=David2]I've been using something called The Natural Dentist Healthy Teeth & Gums All In One Fluouride toothpaste [/quote]

I'm glad you mentioned this. I bought a different one from the same company. But yours looks better. And great news from Brian. The toothpaste is the most important part.

I might as well post comments on other products. I've tried mouth rinse from Bioxtra and Rite Aid. The Rite Aid has a stronger mint flavor, which I think is a disadvantage. But the Rite Aid is not so strong I cannot use it. The Rite Aid comes in a squeeze bottle, which I like. The Bioxtra you pour into a little plastic cup they include. Rite Aid costs less.

I also got the oral gel from Bioxtra. It's okay. It coats the teeth. But it disappears more quickly than I'd like. But right now it's the best thing I can find.

And I got the spray from Rite Aid. It's gentler than old Biotene.

As for the Bioxtra toothpaste, it stings my mouth. I have to rinse with water right away.


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Jan 2013
Posts: 1,293
Likes: 1
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jan 2013
Posts: 1,293
Likes: 1
Great news Brian!

It is pretty amazing to think an effort by a very small entity could get a product to market so quickly and on the mark! Kudos to you and OCF!


Don
Male, 57 - Great health except C
Dec '12
DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes
1 tooth out
Jan '13
2nd tooth out
Tumor Board -induction TPF (3 cycles), seq CRT
4-6/2013
CRT 70gr 2x35, weekly carbo150
ended 5/29,6/4
All the details, join at http://beatdown.cognacom.com
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
Do their new products include the gum?


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jul 2011
Posts: 945
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jul 2011
Posts: 945
Great to hear the toothpaste is coming. Thanks much, Brian!
Maria


CG to husband - SCC Tonsil T1N2M0 HPV+ Never Smoker
First symptoms 7/2010, DX 12/2010
TX 40 IRMT (1.8 gy) + 10 Cetuximab
PET Scans 6/2011 + 3/2012 clear, 5 year physical exam clear; chest CT's clear of cancer. On thyroid pills. Life is good.
Joined: Apr 2008
Posts: 117
Likes: 1
Senior Member (100+ posts)
Offline
Senior Member (100+ posts)

Joined: Apr 2008
Posts: 117
Likes: 1
I was told by my periodontal office that USC school of dentistry had a staff meeting to discuss what to do about the Biotene issue. The sentiment was the Biotene products are no long suitable, and other solutions need to be found. So it's not just us patients who are concerned. And it won't be long before GSK has to stop claiming Biotene is the number one recommended brand.


Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
Joined: Jan 2006
Posts: 756
Likes: 1
"Above & Beyond" Member (500+ posts)
Offline
"Above & Beyond" Member (500+ posts)

Joined: Jan 2006
Posts: 756
Likes: 1
I don't recall ever seeing commercials on TV for Biotene until after they changed the formula. I hope this hurts GSK big time financially! Unfortunately many folks don't know about the change and I've seen some doctors still recommending it. I do my best to educate my doctors about the change. I'm glad to hear USC school of dentistry is aware - need to get the medical community informed and involved. Thanks for posting this.


Susan

SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2022 (ORN)
Joined: Sep 2006
Posts: 8,311
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)
Offline
Senior Patient Advocate
Patient Advocate (old timer, 2000 posts)

Joined: Sep 2006
Posts: 8,311
I just received a letter from GSK advising me that they will no longer mfg the Biotene Gum. They also gave me a $1.00 off coupon. WOW I feel so much better now.


David

Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
Joined: Jul 2009
Posts: 1,409
Patient Advocate (1000+ posts)
Offline
Patient Advocate (1000+ posts)

Joined: Jul 2009
Posts: 1,409
It IS the little things, isn't it, D1? Given your profession I'll leave it up to you to figure out what a buck off something that doesn't exist anymore comes to. Me I'm just happy if I finish my peanut butter sandwich and the comics at the same time. (with plenty of water to be sure!)


David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
Joined: Dec 2003
Posts: 2,606
Likes: 2
Patient Advocate (old timer, 2000 posts)
Offline
Patient Advocate (old timer, 2000 posts)

Joined: Dec 2003
Posts: 2,606
Likes: 2
I hope you share the coupon with all of us, David.


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
Page 13 of 20 1 2 11 12 13 14 15 19 20

Link Copied to Clipboard
Top Posters
ChristineB 10,507
davidcpa 8,311
Cheryld 5,260
EzJim 5,260
Brian Hill 4,916
Newest Members
Chezzter2, Balvertos, Lainie, Wendita1717, GailC
13,254 Registered Users
Forum Statistics
Forums23
Topics18,218
Posts197,066
Members13,255
Most Online875
Dec 21st, 2024
OCF Awards

Great Nonprofit OCF 2023 Charity Navigator OCF Guidestar Charity OCF

Powered by UBB.threads™ PHP Forum Software 7.7.5