| | Joined: Nov 2012 Posts: 30 Contributing Member (25+ posts) | OP  Contributing Member (25+ posts)
Joined: Nov 2012 Posts: 30 | I'm not sure what I'm doing wrong, but it looks like my post didn't get through.
Mike, 55
7/1/12 R Cervicl mass size of lg grape
9/12/12 diagnsd SCC lymphoid tissue level II BOT HPV+ blind primary
10/22/12 7wks rads, 2 cispltn
11/16/12 PEG in
12/18/12 tx end
1/14/13 PEG out
non-smkr, no caregiver
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Mike, Im very sorry! A few months ago the OCF servers got a much needed upgrade. Along with the upgrade, there has been an ongoing issue with using copy/paste and certain characters making posts appear blank. Try retyping it directly into the white box and avoid using characters even as simple as an exclamation point.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Nov 2013 Posts: 9 "OCF Canuck" Member | | "OCF Canuck" Member
Joined: Nov 2013 Posts: 9 | JUST COMPOSED A REPLY THAT WAS NOT POSTED
THIS IS THE SAME PROBLEM I HAD A FEW MONTHS AGO.
HOPE THIS POST GOES THROUGH.
I HAVE NEVER USED COPY/PASTE - SIMPLY REPLY IN THIS BOX AND HIT SUBMIT.
TRULY HOPE THIS ONE WORKS , WITHOUT A CAREGIVER I AM HOPING TO GET SOME SUPPORT THROUGH THIS VERY GRUELLING PROCESS.
base of tongue scc 11/02/13
stage 4 hpv16
necrotic lymph-left
CYSPLATIN 2x- unable to tolerate 3rd
RAD35=imrt completed feb 28-2014
70gy
peg -removed -april 2014
bot cancer -not visually evident
lymph node still slightly over sized 1.3 cm no surgery planned
wait for future scan results march2015
terrible digestion for months
inguinal hernia a result?
no appetite most days-
| | | | | Joined: Jun 2013 Posts: 262 Gold Member (200+ posts) | | Gold Member (200+ posts)
Joined: Jun 2013 Posts: 262 | Hi MarcoPolo, welcome -- Sorry the server Gremlins ate your earlier posts! You may want to start a new thread under "Introduce Yourself" so that more people notice and respond to your post.
It looks as though you wrapped up treatment recently, is that right? This is a brutal regimen and enduring it without a caregiver would be even harder. How are you feeling?
You'll find loads of warmth and support here, truly.
Lynn
53
T3N2aM0 HPV+
5/26/13 discovered painless superball-sized lymph node in neck
6/26/13 DX SCC R palatine tonsil
7/16/13 TORS tonsillectomy & selective ND, mets to 2 nodes
9/3/13 Cisplatin and rads begin, tolerated 1.5 of 3 planned chemo doses
10/16/13 Treatment ends
Dec 13 Ulcer appears at surgery site
Jan 17 Biopsy -- no cancer!
Feb 17 CT/PET Scan lights up tonsil bed & nasal cavity, docs say probably inflammation, don't panic, rescan when ulcer subsides
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Hey Marco Polo from one Canadian to another hi! Where is your partner being treated?
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | The blank posts can also be the result in using certain characters. Im sorry if you have been having problems with making posts. Looks like your last post went thru just fine. You are in the right place to get info and support. We will help you get thru this.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | | Joined: Mar 2002 Posts: 34 Contributing Member (25+ posts) | | Contributing Member (25+ posts)
Joined: Mar 2002 Posts: 34 | Hello everyone, I restored the posts that went missing. If they are showing up do not edit the post. The characters are being corrupted when you go back and try to edit. I will be upgrading again this weekend to the latest version so I think that will correct the issue. Thanks for your continued understanding. | | |
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