| Joined: Dec 2010 Posts: 23 Member | OP Member Joined: Dec 2010 Posts: 23 | Three years out from treatment for BOT cancer. Everything remains clear. I now need to have a tooth extracted. Radiology oncologist (sp?)said I do not need hyperbaric. Most everything I have read online indicates the need. Any thoughts or comments? Thanks
60 yro male, non smoked, moderate beer drinker, active, overall good health dx 110310 biop 120910 SCC BOT RT T3 N2C MO bone scan 010411 rad 011111 pet scan 011211 chemo 011311 port 011411 peg 012100 Treatment Gainesville Fl Va & N. Fl Radiology / Oncology
| | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Buster, I am one who firmly believes in HBO and how effective it is in helping to avoid ORN. Ive done many dives so I speak first hand about how well it worked for me. Here is a similar recent thread on roughly the same subject. Check out my reply dated 2/10/14 and review the links on HBO and ORN. Then you can make a better informed decision. Many dentists are unfamiliar with the special care an OC patient requires. You may want to seek out another professional to do your extractions. Best wishes! Other HBO thread... read my post from 2/10/14 and the links ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 4 | Why take a chance? I would rather play on the side of caution and have the HBO than end up having to have a mandiblectomy sometime in the future.
best of luck.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: May 2009 Posts: 1,412 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: May 2009 Posts: 1,412 | Buster, I am four years out of treatment and have a tooth that is causing pain. My RO told me to leave it alone unless it becomes unbearable. He said he never recommends extraction unless the tooth is black. He said have a tooth extraction would cause more harm and I would indeed have to have HBO before and after any extraction to prevent ORN.
Angelia 31 at Dx. DX: 4/30/09, 10/21/09 SCC on floor of mouth, T1NOMO, T2N1M0 TX: 39 IMRT, 8 cisplatin 11/30/09 PET/CT: 11/03/09: Lymph node involvement PEG/PORT: 11/09 TX end: 02/01/10 PET Scan: 04/05/10 clear PEG Out: 06/21/10 Biopsy: 12/23/10: fibrosis HBO: 01/04/11 - ORN Baby girl born 11-30-12
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | I needed a tooth extraction in 2011, and all my doctors, oncologist, ENT, Oncology dentist said I needed HBOT, with the 20/10 Marx protocol. I need more extractions, actully all my teeth, are black, down to the gum line, and causing too many infections, abcesses, with different doctors now, say I need to do HBOT again, but have to wait until I'm clear of cancer, otherwise it can feed it. It depends where you received radiation, and if in the oral mouth, especially the mandible, and above 60Gy, I believe vs. someone who was only radiated in the larynx, neck for example. It's more injury, like extractions is true, that can result in ORN rather than from infections, and ifroot canal can be done it's prefable.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2010 Posts: 23 Member | OP Member Joined: Dec 2010 Posts: 23 | Thanks for the response. Spoke with my Doc today and have an appointment next week. Seems to be some confussion between the dentist and doctor. It appears that I will be doing the 20/10 schedule. Thanks again.
60 yro male, non smoked, moderate beer drinker, active, overall good health dx 110310 biop 120910 SCC BOT RT T3 N2C MO bone scan 010411 rad 011111 pet scan 011211 chemo 011311 port 011411 peg 012100 Treatment Gainesville Fl Va & N. Fl Radiology / Oncology
| | | | Joined: Jan 2011 Posts: 168 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2011 Posts: 168 | I had to have two wisdom teeth removed two years afar treatment ended, and I was told I had to have HBO. It was a painless pain in the you know where. I got to watch a lot of good movies, but it meant driving to long treatments every day. However, the risk of complications was great. I would do it again if I had to. -Michelle
SCC left tonsil, stage IV, HPV+, metastatic to one lymph node. Biopsy 12/23/10; tonsillectomy 1/13/11; DX 1/25/11; Peg in 1/28/11. Peg out 6/29. TX 1/31/11-3/21/11: 35 IMRT plus 3 Cisplatin. Pet-Scan 6/20/11 = CLEAR! Three years out, learning to live with the long-term side effects of radiation while reminding myself to feel blessed.
| | | | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2016 Posts: 75 Likes: 2 | Paula, what is 60 Gy, I had radiation to the mouth and now have to have some teeth pulled
SCC 2005 floor of mouth and neck disection SCC 2009 partial rt tongue RAD PEG 2009 20 HBO treatments following surgery of three teeth and 10 more HBO to follow 2015 Diced food diet due to weak muscles long term effects of radiation 2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Me? Gray (Gy) is the radiation dosage amount. Actually, I read another abstract that says it's above 45Gy. Your radiation oncologist knows where and how much you were radiated, but if its SCC, squamous cell carcinoma, the minimum is usually over 50Gy to kill SCC, and it also depends on how far out you are from your radiation. You many have to get clearance from the radiation oncologist. Hope this answers your question.
Good luck.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Apr 2016 Posts: 75 Likes: 2 Supporting Member (50+ posts) | Supporting Member (50+ posts) Joined: Apr 2016 Posts: 75 Likes: 2 | Thank you, it has been almost 5 years out of radiation and I am so confused because everywhere I read it states don't pull them. Plus I am allergic to most antibiotics, so I am a nervous mess. I read that you have had extractions, was it after radiation and bottom teeth? Michele
SCC 2005 floor of mouth and neck disection SCC 2009 partial rt tongue RAD PEG 2009 20 HBO treatments following surgery of three teeth and 10 more HBO to follow 2015 Diced food diet due to weak muscles long term effects of radiation 2018 Radiation Fibrosis of the jaw and neck, vocal cord dysfunction
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