| | Joined: Feb 2014 Posts: 1 Member | OP  Member
Joined: Feb 2014 Posts: 1 | Hello All, I would like to introduce myself. I am a Survivor. When Does Cancer ever come at the right time? Not ever...I am a Gardner and love Nature and Biking. I was diagnosed with an Branchial Cleft Cyst by my ENT in 2010 to find it had 2 small squamous cell carcinoma in biopsy so I underwent 6 weeks of Radiation to my left side of neck. Pet Scan came out clear in December 2010!
On August 2013 I had a lesion in my mouth that wouldn't heal near the base of my left tonsil, intially I thought I had streph throat and the doctor treated with antiboitics. I went to the dentist and he recommended me going back to my ENT which he operated end of August to remove my left tonsil and scoped out area where the lesion was so I have an small encave where lesion was biopsied squamous cell carcinoma stage II HPVPos. I finished up Proton Radiation 2xs a day M-F with Chemo on Mondays along with this. I just had a Pet Scan on the 24th of Feb 2014. My Oncologist will give me the results on March 10th, 2014.
I feel optimistic and have slowly have gotten back to exercising. I am glad to be on this forum with others to share information and get hints of what to do and maybe not to do. I feel lucky to be here. Nice to meet you all. I am a mother of 2 grown children and a grandmother of soon to be 5 and am 57 years old.
SCC Survivor 1st Diagnosed in 2010 had Left side under jaw removed lymph gland 2010 biopsied SCC 6 weeks rads Clr Pet Scan 2nd Diagnose 2013 left tonsil, palate sore that wouldn't heal removed surgery biospied SCC Had Chemo Cisplt Proton Rads finish Dec 4th 2013 Pt scan showed hot spots thought early had CT with contrast was clr ENT Oncologist EVMS did Pandescopy with biopsy 3rd dianox Monday May 12 cancer in spot behind jaw line Surgery next are meet with tumor board will find out 27th HPV Pos
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF, Gardner! You have found the best place for info and support for OC survivors and caregivers. Its always nice to see fellow survivors joining our group.
Feel free to ask questions and we will try our best to help you.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | | "OCF Kiwi Down Under" Patient Advocate (1000+ posts)
Joined: Mar 2011 Posts: 1,024 | Hello to another survivor.
Sounds like you are doing very well. Optimism and zest will stand you in very good stead in your recovery . Sure am hoping you get great results on the 10th.
Take care,
Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
| | | | | Joined: Jan 2013 Posts: 1,293 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jan 2013 Posts: 1,293 Likes: 1 | Welcome to OCF, Gardner! So glad to hear there was action so promptly after detection. Sounds like you have a good plan going. Hang around and keep us updated. don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | | Joined: Jan 2013 Posts: 57 "OCF Canuck" Supporting Member (50+ posts) | | "OCF Canuck" Supporting Member (50+ posts)
Joined: Jan 2013 Posts: 57 | Welcome Gardner Branchial cysts are quite often misdiagnosed, I had the same issue, I put off operation for six months to remove as I did not know they are quite often actually cancerous lymph nodes. I think doctors would rather they be cysts then the other option. My tonsil was scc as well although they figure primary was base of tongue HPV pos is a good thing as usually better outcomes good luck on your results....ken
46 yr old non smoker moderate drinker
Lump on neck
Dx branchial cyst by fna mar 2012
Op to remove dec2012 biopsy back hpv 16 scc
Starting rads jan 31 no chemo docs say?
Finished mar13
Pet scan june 30 NED :)))
Back to work and enjoying life
Checkup aug 12 all good
| | | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Jul 2012 Posts: 3,267 Likes: 4 | Welcome Gardner. I just finished Proton Therapy in January for a neck recurrence, and will have my post treatment PET/CT in May, and wish you good luck. As Doolittle mentioned, Brachial Cleft Cysts are often misdiagnosed. It was previously thought, and was debatable, that the cyst could possibly transform to SCC. These days, it is more recognized that if the cyst is SCC, is likely to be an early Metastases for HPV in the oropharynx, usually the tonsil or BOT.
10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 4 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 4 | Welcome and so glad you are doing well. ;o)
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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