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| | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | Definitely get a referral to an ENT who is a cancer specialist and works at a top cancer dr. All ENTs are not made the same. Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Feb 2014 Posts: 14 "OCF Down Under" Tasmania Member | | "OCF Down Under" Tasmania Member
Joined: Feb 2014 Posts: 14 | thank you Cheryl  these tablets seem to be working. taking that horrible pain away but still need pain killers for the aching. but im happy
november 2013 biopsy/ partial exision on right side tongue
confirmed scc
dec 11 2013 surgery to remove cancer
19mm by 7mm
no RAD
bad nerve pain caused by tumor growing on nerve
21/2/14 started Lyrica pregabalin
17/4/14 biopsy\ partial glossectomy
stage 4 tumor left side tongue and floor of mouth.
2/6/2014 opn to get clear margins/ bilateral neck dissection. bone removed from jaw & free flap on floor of mouth & more tongue removed.
21/7/14 radiation and chemo
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 8 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 8 | Im so glad you are not hurting. Nobody should ever have to suffer in pain. Mouth pain can be intense. Hopefully soon you will be feeling alot better.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | |
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