| | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) |  "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Good luck on the biopsy. Whatever the results show we will be awaiting your report.
Until results arrive, go out, have some fun, do NOT sit at home wondering about it, worrying about it, thinking about it. Put it completely out of your mind. It will be what it will be, worrying about it won't change the results at all. Long story short, don't waste your valuable time worrying. There are too many other fun and productive things to be spending your precious time on.
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Jan 2014 Posts: 8 "OCF Down Under" Member | | OP "OCF Down Under" Member
Joined: Jan 2014 Posts: 8 | Thankyou tony, been waiting 7 weeks for this day, so will continue to keep on " living" I'm just so glad that finally I'm getting a biopsy
Ct scan showed lesion on BOT 30/12/13, barium swallow showed mass on BOT 10/1/14, thyroid scan ruled out lingual thyroid 14/2/14, biopsy on BOT 20/2/14, biopsy all clear diagnosed lingual tonsil lymphoid hytrophy. Did not test for HPV. 29/4/14 CT scan on chest and neck, lesion or mass on BOT not changed. 2 nodes 7mm noticed on left neck, 1 tiny node 3mm on chest was noted.
| | | | | Joined: Jan 2014 Posts: 8 "OCF Down Under" Member | | OP "OCF Down Under" Member
Joined: Jan 2014 Posts: 8 | I had my tongue biopsied and it came back as lymphoid hyplasia? Of the lingual tonsil. He didn't test it for HPV. I went back to ENT on Monday this week and told him I'm struggling to breath at night and I don't feel it's getting any better. He pretty much said it had reduced in size and that it was all in my head ( not in those words but that is how I took it) then he said he'd send me for another CT scan of my neck and chest. Well he rang my hubby today nd said the scan results are all ok.. I picked up the scan this afternoon and the report says, that the enlargement on the tongue base has not changed since the previous ct scan, but they did note several nodes on the left side which were 7 mm in size ( I know that's not big) and then there is a node 3mm size on my center lungs? Could that mean that it's getting worse? It's been 4 months since the first CT scan whose to say in another 4 months the nodes might be bigger.. I'm thinking of getting a second opinion. What are your thoughts? Any help would be appreciated 
Ct scan showed lesion on BOT 30/12/13, barium swallow showed mass on BOT 10/1/14, thyroid scan ruled out lingual thyroid 14/2/14, biopsy on BOT 20/2/14, biopsy all clear diagnosed lingual tonsil lymphoid hytrophy. Did not test for HPV. 29/4/14 CT scan on chest and neck, lesion or mass on BOT not changed. 2 nodes 7mm noticed on left neck, 1 tiny node 3mm on chest was noted.
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | You can always get another opinion.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 |
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | |
| Forums23 Topics18,253 Posts197,151 Members13,339 | | Most Online1,788
Jan 23rd, 2025 | | |
|
