| Joined: Jul 2009 Posts: 1,409 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2009 Posts: 1,409 | Thanks, Brian. It'd be great to do a side by side comparison with the stuff I bought.
David 2 SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 15 years all clear in 6/24 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | My husband has tryed 'BioXtra' and found that the toothpast and mouthwash burnt quit a bit. He has reverted to using the 'GreenBeaver' toothpast which doesn't burn but also doesn't have the important fluoride ingredient.
As for the oral gel spray, my husband said that it stings less and he does use it sometimes at night but he only find it helps a little. Today, he is one month post radiation so maybe this is why everything from mouthwash to pepper still burns his mouth.
Wow Brian thank you for sharing, I am enjoying getting to know you better. You are right, the great leaders are the ones at your side when you least expect it!
husband 61@diagnosis painter 6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis 17/9/13 Dx(moderately aggressive) 24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube 2/01/14 (30 tx)rads 60gy N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes) Clear margin, close 2mm inner cheek 15/05/14 cellulitis 3/12/14 Chest CT Clear 27/02/15 cellulitis 8/6/15 cellulitis 10/6/15 Osteomyelitis
| | | | Joined: Feb 2014 Posts: 10 Member | Member Joined: Feb 2014 Posts: 10 | Oh no! My husband relies heavily on Biotene mouth spray due to no saliva glands. In Sept. 2013 I noticed it was off the shelves so I called the company who stated they removed that product due to mislabeling regarding the sugar content. It would probably come back into the market around January 2014. In the meantime I looked everywhere for any mouth spray product and only found CVS brand spray. My husband actually said it sprayed better than the Biotene but was more expensive. I ordered several bottles at a time from a local CVS but now it is not available and the manager said it looks like it will be discontinued. Does anyone have any ideas?
Vicki caregiver to incredible man survivor of several partial glossectomies, jawbone removal, 2 courses of chemo/radiation-2009 and most recently Jan14 | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | I also used the Biotene mouth spray as well as the toothpaste and mouthwash, and I am very disappointed with GSK for changing a great product.
Another OC survivor had recommended an oral spray by MedActive that I've been using for about 6 months now and I do like it. It is expensive, and is carried by only a few pharmacies, but you can order it directly from the company's website.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Sep 2013 Posts: 105 "OCF Canuck" Senior Member (100+ posts) | "OCF Canuck" Senior Member (100+ posts) Joined: Sep 2013 Posts: 105 | Hi there, my husband tryed the last product from BioExtra, the mouth gel and said that it did not sting and that it helped moisten and freshen his mouth for about 20 minutes. It was the last product he tried but the most satisfying! I ordered a box of twelve from the US
husband 61@diagnosis painter 6/9/13 Exophylic invasive SCC IV(ext.gingivobuccal) 3cm+ mandibular/lytic/erosion, jugular/node9mmshort-axis 17/9/13 Dx(moderately aggressive) 24/10/13 left madiblectomy, mod radical neck disct, leg flap, NGtube 2/01/14 (30 tx)rads 60gy N2b (2nodes under jaw) (rem. in tiny nerves) (rem. 30 nodes) Clear margin, close 2mm inner cheek 15/05/14 cellulitis 3/12/14 Chest CT Clear 27/02/15 cellulitis 8/6/15 cellulitis 10/6/15 Osteomyelitis
| | | | Joined: Feb 2014 Posts: 10 Member | Member Joined: Feb 2014 Posts: 10 | There are so many knowledgeable people on this website I can't express myself anywhere near in comparison but can say how truly thankful I am that I have found you. Each comment or forum I have viewed gives me a sense of strength and I value each person here. I wish my husband was a computer person but he is not; nor the type to get started. He relies totally on me and I thank you for all information. To get back to the topic of "Biotene" replacement products; what is the name of the sample products you are checking out, Brian? I have few options as far as pharmacies (or drug stores as they used to call them) in the area I live so I need to investigate more. I look forward to getting more comfortable using this site and learning more.
Vicki caregiver to incredible man survivor of several partial glossectomies, jawbone removal, 2 courses of chemo/radiation-2009 and most recently Jan14 | | | | Joined: Jun 2013 Posts: 4 "OCF Canuck" Member | "OCF Canuck" Member Joined: Jun 2013 Posts: 4 | for what its worth, I live in Campbell River B.C. Canada, Our local Wall Mart store still carries the old Biotene toothpaste formula, so I stocked up a couple months back, looked again yesterday and its still on the shelf $6.95 a tube, so i picked up a couple more tubes. must be old stock i guess. regards Dave. | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) Joined: Jun 2007 Posts: 10,507 Likes: 7 | Did you check the ingredients to make sure it was the old formula? Several pages back the old formula's ingredients were posted.
PS....rdb--- Please add a signature when you can. It helps us to better help you. I should have sent you a message when you first joined. I will resend it just in case I missed you. The message will give you directions on how to make your signature as well as other forum tips. Thanks! ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive | | | | Joined: Mar 2014 Posts: 1 Member | Member Joined: Mar 2014 Posts: 1 | I'm new here - found this site searching for replacement for Biotene products due to formula change. I HAVE discovered a very good replacement for the toothpaste - expensive ($14.00/tube), but the ingredients are solidly helpful. It is called PerioBiotic Toothpaste, made by Designs for Health. It's sold on a number of websites. I found free shipping on LuckyVitamin.com and on PureFormulas.com. For a replacement on the Biotene mouthwash - Walgreens sells their brand containing most of the old Biotene ingredients, and Rite Aid also sells their brand containing most of the same ingredients. Now - I'm looking for the post mentioning the spray used to combat infection and aid in healing that I read a couple of days ago. So glad I've found this forum!
Wordless
| | | | Joined: Mar 2002 Posts: 4,916 Likes: 63 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,916 Likes: 63 | Wordless - if you would post the list of ingredients from PerioBiotic Toothpaste it would give us all a chance to look at things from a science perspective and not just your anecdotal endorsement (not that that isn't helpful) But we are finding lots of things out there, non contain the enzymes of the OLD biotene, so now we are looking for other alternate effective ingredients till that patent runs out next year.
Last edited by Brian Hill; 03-19-2014 03:04 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | |
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