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| | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) |  Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Even if your father doesnt officially join our group, he can still benefit from it. Several caregivers have used the following tactic with their patients. They will print out a bunch of posts they feel are important to the patient. From there they will "accidentally" leave them someplace the patient can find them and read it. This works especially well when left someplace the patient is able to read the printed posts in private and is able to pretend they never touched the stack of printed posts. That will help the patient to save face with not "needing" the forum but still getting them to learn the important info indirectly without being told by their caregiver. It works very well when eating becomes a challenge and the patient wont push themselves to take in the minimum of 2500 calories and 48 oz of water.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Sep 2012 Posts: 381 "OCF Canuck" Platinum Member (300+ posts) | | "OCF Canuck" Platinum Member (300+ posts)
Joined: Sep 2012 Posts: 381 | Jenni, yes for sure on second opinion. Your summary of his history doesn't mention surgery the first time, and it looks like it was caught relatively early.
I had surgery without the rads, so there are always numerous options.
Good luck!
Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
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