| | Joined: Jan 2014 Posts: 4 Member | OP  Member
Joined: Jan 2014 Posts: 4 | My husband had radical rt tonsil/resection 9/25/2012. All clear follow-ups. However, he is still "Nothing by Mouth".
Anyway, his left side is now swelling. Yesterday, in AM it was sore and later I could actually see a protrusion. He has had a sore throat for about a week-but I did also.
What do you think?
JULIE
johnswife and caregiver
stage 4 SCC, HPV, Resection and Reconstruction od soft palette 35 Radiation txs, 2 Cisplantin, Spent Dec 2012 in ICU for Aspiration pneumonia. Came home from Charleston jan 2013, All clear PET in Nov.
| | | | | Joined: Oct 2013 Posts: 559 Likes: 1 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Oct 2013 Posts: 559 Likes: 1 | Why is he still nothing by mouth?
I had tonsilectomy 9/20 (no re-section) and have been able to swallow even since then.
Typically, we say if problem doesn't clear within 2 weeks a doctor visit is in order. But, with his "protrusion" I might go ahead and call tomorrow.
Good luck with it, and welcome to the family.
Tony
Tony, 69, non-smoker, aerobatics pilot, bridge player/teacher, avid dancer (ballroom, latin, swing, country)
09/13 SCC, HPV 16, tonsillectomy, T2N0.
11/13 start rads, no chemo
12/13 taste gone, dry mouth,
02/14 hair slowly returning
05/14 taste the same, dry sinuses, irrigation helps.
01/15 food taste about 60% returned, dry sinuses are worse in winter.
12/20 no more sinus problems, taste pretty good
| | | | | Joined: Jun 2007 Posts: 10,507 Likes: 7 Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts) | | Administrator, Director of Patient Support Services Patient Advocate (old timer, 2000 posts)
Joined: Jun 2007 Posts: 10,507 Likes: 7 | Welcome to OCF!
You never know what is going on, it could be an infection or it could be nothing serious. After going thru what your husband has its hard not to get worried over any symptom even minor ones. I always err of the side of caution and get things checked out. Its better to be safe than sorry. Call the doc (ENT) and get your husband thoroughly checked out.
ChristineSCC 6/15/07 L chk & by L molar both Stag I, age44 2x cispltn-35 IMRT end 9/27/07 -65 lbs in 2 mo, no caregvr Clear PET 1/08 4/4/08 recur L chk Stag I surg 4/16/08 clr marg 215 HBO dives 3/09 teeth out, trismus 7/2/09 recur, Stg IV 8/24/09 trach, ND, mandiblctmy 3wks medicly inducd coma 2 mo xtended hospital stay, ICU & burn unit PICC line IV antibx 8 mo 10/4/10, 2/14/11 reconst surg OC 3x in 3 years very happy to be alive  | | | | | Joined: Jan 2014 Posts: 4 Member | | OP Member
Joined: Jan 2014 Posts: 4 | Thank-you both. He wants to go to GP--I am pushing for the ENT Cancer Surgeon who has done follow-ups.
No swallowing story--His reconstruction has left him with what looks like a diverticulum, during the Barium Swallow, liguid would go done with the hard swallow and then as he released the pouch(diverticulum) would push it bsck up and the epiglottis isn't in position then to protect his lungs~! Been trying to convince surgeon to do something.
Musc in Charleston does not believe he could benefit from the Stimultor-- says he doesn't have any nerves left there.
JULIE
johnswife and caregiver
stage 4 SCC, HPV, Resection and Reconstruction od soft palette 35 Radiation txs, 2 Cisplantin, Spent Dec 2012 in ICU for Aspiration pneumonia. Came home from Charleston jan 2013, All clear PET in Nov.
| | | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | | "OCF Canuck" Patient Advocate (old timer, 2000 posts)
Joined: Dec 2010 Posts: 5,264 Likes: 5 | I think it's time to see someone else - if what he has going on with his swallowing can be corrected I would push for that. With regards to his present issue if there is ever anything that has you concerned I would go see your specialist right away - don't wait. Best of luck
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 |
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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