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Joined: Sep 2012
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"OCF Canuck"
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"OCF Canuck"
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If you can find, the Arbonne mouthwash is one of the few that didn't burn.

Also, I found that any colored mouthwash (especially blue or green) left colour on my tongue, making the incision line like look almost black.

Yep, that's just what we need...first time it happened, I thought something was rotting, lol!


Tina
Diag: Aug. 13/12
T3N0M0
50% + glossectomy and bilateral radical neck dissection, removal of nodes zones I - V
Surgery October 11/12
Chemo/rad on hold due to clear margins and nodes
Sept 21/13 clear CT with anomaly thought to be the artery, being watched closely.
Dec 16/13 - anomaly confirmed artery, all clear
nickname: "get 'r done"
Plans: kick cancer's butt
Joined: May 2009
Posts: 1,412
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Regular toothpaste has now started making my mouth burn, and sensodyne does too. The only thing that didnt make my mouth burn was biotene. Now what do I do? In the ment time I went back to my Crest toothpaste, but it burns like the dickens. On the look out for something else.


Angelia
31 at Dx.
DX: 4/30/09, 10/21/09 SCC on floor of mouth,
T1NOMO, T2N1M0
TX: 39 IMRT, 8 cisplatin 11/30/09
PET/CT: 11/03/09: Lymph node involvement
PEG/PORT: 11/09
TX end: 02/01/10
PET Scan: 04/05/10 clear
PEG Out: 06/21/10
Biopsy: 12/23/10: fibrosis
HBO: 01/04/11 - ORN
Baby girl born 11-30-12
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I just tried a couple of children's toothpastes. They have the same fluoride that we all need, and have far less harsh flavoring. I have yet to settle on one, but at the end of the day the ingredient list isn't significantly any different than the new Biotene formula.

OCF had a call from Procter and Gamble who is interested in entering the marketplace. I suspect they would like more feedback, recommendations, before they take the leap into what is a pretty small (by their standards) marketplace. They might like an endorsement, which OCF can't do� even for money if we wish to keep our credibility. The only way around that would be if they were the only product of the type out there. They own tons of major oral care brands and have enough money to do anything they want. GSK created a vacuum by doing what they did, and others are paying attention. This was an unnecessary, self inflicted wound, that has left blood in the marketing world of toothpastes. The sharks will come�.

Sensodyne is another GSK product like Biotene. They are making many of their formulas more similar. Remember that the one difference between "sensitive" toothpastes and all others (no matter the brand) is they mostly use one more active ingredient listed right with the fluoride. That ingredient is 5% potassium nitrate. I just bought a tube of CVS Pharmacy's store brand sensitive toothpaste that has essentially the same ingredients as Sensdyne, for $99 cents for a 4oz. tube. I am starting to photograph all the boxes at major drug stores for brands and ingredient lists. You would be surprised at how similar most of them are. I have a chemist that has put together toothpaste formulas for others and knows what each ingredient contributes to the process, and I will put up a list of things that are harmless and others that are ones you should stay away from, like SLS (sodium laurel sulfate) which in some people is a significant irritant.

But toothpastes are far from rocket science. It's a fairly homogenous market of similar products with different marketing strategies, and budgets to get their brand market share.

I have also had a conversation with GSK, and heard like many others, their new marketing meme about why they did this. It is so much nonsense. You just don't go out and pay almost 200 million dollars for a formula and brand (they did not buy a company) and then two years later tell everyone that the formula you just paid all that money for is so bad it has to have a 99% makeover. Why buy it if it is so bad� the only reason was to buy market share that the brand name carries. They think the lemmings will follow the brand no matter what the formula is, and to some extent they are correct. But not those of us that read labels and think for ourselves.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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What about Tom's of Maine, now owned by Colgate? They already serve a variety of niche markets and place a very value on their ingredients. They might be up for the challenge.

Last edited by margaret_in_ma; 11-03-2013 08:31 PM.

Stage IV SCC lt lateral tongue, surgery 5/19/08 (partial gloss/upper neck dissection left side/radial free flap reconstruction) IMRT w/weekly Cisplatin & Erbitux 6/30/08, PEG 1 6/12/08 - out 7/14 (in abdominal wall, not stomach), PEG 2 7/23/08 - out 11/20/08, Tx done 8/18/08
Second SCC tumor, Stage 1, rt mobile tongue, removed 10/18/2016, right neck dissection 12/9/2016
Third SCC tumor, diagnosed, 4/19/2108, rt submandibular mass, HPV-, IMRT w/ weekly Cisplatin, 5/9 - 6/25/2018, PEG 3 5/31/2018
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CVS makes knock-off Biotene products. I always preferred its mouth spray to Biotene's. I was just at my local CVS store and saw that the CVS Mouthwash has enzymes listed in it's contents so, hopefully, their Biotene knock-offs across the board will have enzymes. However, I don't know if CVS has any additional dry mouth products beside these two.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
Susan2992 #174249 11-19-2013 04:57 PM
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Just look at the most recent negative reviews of the Biotene products on Amazon. Many users there are aware of the change in the products.


Stage 3-4 Squamous BOT diagnosed 3/19/12
Molars removed 3/29/12
(Cisplatin) inpatient: 4/11/12-4/16/12; 5/2/12-5/9/12; 5/29/12-6/4/12
Feeding tube: 8/9/12-11/21/12
Radiation 8/10/12-8/29/12
Chemo 1X/week 8/10/12-8/22/12
Last PET/CT clear: 9/17/13
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I have been using Biotene moisturizing mouth spray for about 3 years now because I found it worked the best of any I have tried. I was told by my supplier today that it is temporarily unavailable because it is being reformulated. Could they be back tracking on the changes Brian was referring to?


David Russell
SCC Mandible stage 4
Surgery & Radiation 2006
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Sounds to me like you will soon get the new "improved" product on your shelves. Beware! Take one that you had at home and compare the ingredients to the new items and you will see its a new product. Glad you read the whole thread so you know the scoop and can use caution when purchasing.


Christine
SCC 6/15/07 L chk & by L molar both Stag I, age44
2x cispltn-35 IMRT end 9/27/07
-65 lbs in 2 mo, no caregvr
Clear PET 1/08
4/4/08 recur L chk Stag I
surg 4/16/08 clr marg
215 HBO dives
3/09 teeth out, trismus
7/2/09 recur, Stg IV
8/24/09 trach, ND, mandiblctmy
3wks medicly inducd coma
2 mo xtended hospital stay, ICU & burn unit
PICC line IV antibx 8 mo
10/4/10, 2/14/11 reconst surg
OC 3x in 3 years
very happy to be alive smile
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If someone found a web page with the old ingredients, it would be simple enough to copy and paste the whole list so we can see it.

BTW, someone I used to know, who was in her thirties and never had a tooth cavity in her life, switched to Tom's toothpaste and got her first cavity within a year.

Last edited by Andrew111; 01-08-2014 12:00 PM.

Squamous cell carcinoma base of tongue. Lymph involvement unclear; staging placed at "2 or 3." Biopsy 4/18/2008. Treatment: IMRT every day for 7 weeks. Cisplaten once a week to sensitize cancer to radiation. Treatment ended 7/16/08. PET/CT shows no more cancer.
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Well, I have just talked to someone that is going to bring to market a paste designed just for our problems. I'm really excited. This is someone that is familiar with the original Biotene formulas and while it will not be an exact copy of those due to patents, he gets exactly what this needs to have. We talked about some other moisturizers that may be included in the formula, aloe, coconut oils, as well as things that are also beneficial like CQ10 and more that would make it a very unique product. I will keep you all informed as I learn more.

GSK is saying that their PBF formulas have not changed. I am not taking them at their word, I am going to compare a new package with photos of the ingredients i have from an old box. But bottom line, until someone sends it out for analysis no one actually knows. This is the problem with the CVS enzyme formulas. They have had them for while, but the amount of enzymes in them is no where near what ws in Biotene. I know because Laclede tested them, and determined this when they were considering suing them for infringing the enzyme patent. (Which is due to run out soon).

I am using the mail order Squiggle product right now to evaluate anecdotally how it feels, and while I find it nothing special except being a fluoride and abrasive delivery vehicle, it has very mild flavor and is not unpleasant to use.


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.
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