#17594 06-16-2005 01:07 PM | Joined: Jun 2005 Posts: 4 Member | OP  Member
Joined: Jun 2005 Posts: 4 | Thank you everyone for your comments regarding amifostine. I have decided to forego the drug for now and will be completing my first week of radiation tomorrow. Only 30 more to go!!! I am hoping I made the right decision for me. If not, there is always salagen and evoxac. Bless you all and stay healthy.
Kathy | | |
#17595 06-16-2005 01:13 PM | Joined: Mar 2002 Posts: 1,140 Likes: 1 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Mar 2002 Posts: 1,140 Likes: 1 | Kathy, like Danny, I had IMRT and today, 3+ years out, have probably 95% of the saliva I had pre-rad. It came back pretty quickly, too, within a few months. I considered amifostine and decided against it, and am glad because I had the result I desired without it. Congratulations on completing one week! | | |
#17596 06-16-2005 01:19 PM | Joined: Apr 2005 Posts: 2,676 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Apr 2005 Posts: 2,676 | Kathy, good luck and a prayer your way for minimal complications from radiation. Amy
CGtoJohn:SCC Flr of Mouth.Dx 3\05. Surg.4\05.T3NOMO.IMRTx30. Recur Dx 1\06.Surg 2\06. Chemo: 4 Cycles of Carbo\Taxol:on Erbitux for 7 mo. Lost our battle 2-23-07- But not the will to fight this disease
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#17597 06-16-2005 01:35 PM | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Like Joanna and Danny Boy,
I also had IMRT and no amofostine. I too have recovered most of my salivary function.
Some people here have had a very difficult time with amofostine.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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