| | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | OP  Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | I like this new forum for use old " regulars"
So I am 4 years post TX. how long do we need to use our fluoride trays..forever??
My teeth have been fine for these 4 years, knock on wood
I hope every one had a great Christmas!!!!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Sep 2006 Posts: 8,311 Senior Patient Advocate Patient Advocate (old timer, 2000 posts) | | Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | I used mine for 5 years PT. I've always taken care of my teeth and have been fortunate not to have any teeth/gum problems before or after rad. My dentist was the one that blessed me stopping after 5 years so obviously do get the opinion(s) of professionals before you stop.
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
| | | | | Joined: Jul 2009 Posts: 1,406 Patient Advocate (1000+ posts) | | Patient Advocate (1000+ posts)
Joined: Jul 2009 Posts: 1,406 | Initially I was told to keep using them for life. No one has suggested otherwise and I'm approaching the 5 year mark. Although my dentist did say about a year ago that I could cut back on the every night usage of the trays to a few times a week and just brush with the Prevident the other nights. I sometimes do this but it's more like 1 or 2 nights per week off the trays. That's mainly because my RO suggested I keep using them. I'm hoping to see her again for a checkup in January and will ask again. Guess I figure since it's no big thing and I really really really want to keep my teeth, what the hell!
(oh and like my compadre just above I've always taken good care of my teeth and had and have no problems that required any extractions or other dire methods back before I started treatment)
David 2
SCC of occult origin 1/09 (age 55)| Stage III TXN1M0 | HPV 16+, non-smoker, moderate drinker | Modified radical neck dissection 3/09 | 31 days IMRT finished 6/09 | Hit 14 years all clear in 6/23 | Radiation Fibrosis Syndrome kicked in a few years after treatment and has been progressing since | Prostate cancer diagnosis 10/18
| | | | | Joined: Nov 2009 Posts: 212 Gold Member (200+ posts) | | OP Gold Member (200+ posts)
Joined: Nov 2009 Posts: 212 | thanks guys, I am diligent about my teeth, floss, brush well after meals, fluoride rinse. I read about the troubles some of us have, that is one I do not want!
I really want to keep my teeth right where they are!!!!
Steve
70 male, athlete...again
SSC of undetermined orgin , early july 09
40 tx radiation, 8 chemo cisplatin and ebuterx
finished TX in mid Sept 09
Clear at the 6 year mark!
Back to swimming, biking and running! just a tad slower
never regained my weight, even when I eat lots and lots, just a skinny guy now
Just way glad to be seeing the green side up!
| | | | | Joined: Jun 2007 Posts: 595 "Above & Beyond" Member (500+ posts) | | "Above & Beyond" Member (500+ posts)
Joined: Jun 2007 Posts: 595 | Hi Steve, I am past the six year mark and this NOV 21 at me annual check up with the Cancer Team to a person told me that I will be using them for life if they have any say in the matter. Just food for thought!! Semper-Fi Bob
Bob age 57, non smoker,non drinker, ended treatment on 11 Nov 2007 and started back to work on 29 Nov 2007. Veterans Day 2012 the Battle was lowered, folded, Taps was played and the Flag buried as I am know a 5 year survivor. Semper-FI !!!
| | | | | Joined: Nov 2002 Posts: 3,552 Patient Advocate (old timer, 2000 posts) | | Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | They switched me from the trays to prescription Prevident with very high fluoride content. My teeth have taken quite a beating from the radiation. I've lost one tooth, had a root canal on #31 which was right in the radiation field (and I am having more problems with it) and have had pretty severe gum recession. I am meticulous in my dental care, Water Pik, woven floss, perio-aid, etc. Evidently the risk of ORN is less in persons who received IMRT or other targeted radiation. We'll see...
Gary Allsebrook
***********************************
Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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