I'm new and want to get the word out about my husbands miraculous recovery from severe neck fibrosis. He had radiation 18 years ago with no problem. Then overnight his neck swelled and he was in critical condition. He was hospitalized for three months and lost 42 pounds because he could not eat. After he was diagnosed with radiation fibrosis ... He was discharged from the (Paris) hospital he was in and told to find a physical therapist. But what I found instead was Dr Sylvie Delanian who published a paper showing results from her treatment. (The paper is peer reviewed and online). she is adamant that her chemical cocktail is a treatment and not a cure. But for us it was a miracle. A year later and my husband is riding is mototcycle/sidecar around the world. The problem is that dr Delanian is based in Paris, but her paper is in English

Thank you - I've looked it up I - very interesting welcome

Thank you. I don't really understand why her findings are not more well known. My husband wrote about the whole process (with photos) on his travel website. Thetimelessride.com. What really makes me mad was that he didn't get the fibrosis diagnosis at the beginning

Great news Lorraine! Thank you so much for this. Could be a lifesaver indeed.

Wonderful results, I look forward to reading the paper and his blog.

Merry Christmas

Tony

The Dr referenced above uses Pentoxyphyline, alpha Tocopherol and clodronate. The first two help blood flow better and the clodronate reduces blood calcium. It is a bisphosphonate which is a class of drugs used to treat osteoporosis. Even in trials up to 24 months as soon as the Pentoxyphyline/alpha Tocopherol was stopped, the fibrosis and associated problems returned. I saw radical results from a combination of the first two within days that only got better almost daily for 2 months. Within a week of stopping a fibrotic mass appeared around my stomach area.

It is strange that the actual mechanisms used by Pentoxyphyline to improve blood viscosity and the calcium improvements seen with clodronate are not fully understood. I stopped the protocol when it appeared I developed a bone marrow issue with all blood counts reducing. The worrisome part was the reduction in reticulolytes, the immature red blood cells produced by the marrow and released into the blood to become grown up red blood cells. Aplastic anemia has been one side effect of concern noted in the Pentoxyphyline/alpha Tocopherol studies back to the early 90's. However, aplastic anemia as well as MDS is also a known late effect complication of radiation treatment. Larry Hagman and Robin Roberts of Good Morning America both developed MDS post treatment. Larry Hagman's rapidly progressed to leukemia and took his life quickly. Robin received a full bone marrow transplant and recovered over many months.

The protocol developed by the above referenced doctor has also shown promise in treating osteoradionecrosis according to some of the papers.

Great find and an important piece in reducing calcium buildup that causes muscle binding, nerve entrapment pain and eventual fibrosis.

Thank you so much! for more information Uptown!. That explains why for eight months he was having weekly blood tests. And what I need to know for possible future complications. Information is power!