| Joined: Mar 2002 Posts: 4,912 Likes: 53 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 53 | Katies show, catastrophe that it was, is our first amendment rights in play. Everyone is entitled to have their opinion. So this is less on the mothers that are looking for a reason why something horrible happened that they can blame, and more about someone who has the key to the bully pulpit giving that person a venue to spread misinformation. This is an issue of someone with the opportunity to move the ball down the field in a positive way choosing to do something that moved it backwards. This is a particularly difficult situation for me, as OCF is a proud strategic partner to Stand Up 2 Cancer, and Katie is a founder of that organization. EIF the parent organization behind SU2C is also OCF's largest donor every year, (through the involvement of Gwyneth Paltrow), so in the middle of all this I am walking a razor's edge of being angry, and not biting the hand that feeds me. OCF has a dream team ( HPV) application in front of SU2C, that I have 6 months invested into putting together.
Last edited by Brian Hill; 12-10-2013 05:13 PM.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jan 2006 Posts: 756 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: Jan 2006 Posts: 756 Likes: 1 | So what can we do?
Spreading the word through our friends and family can only do so much.
Susan
SCC R-Lateral tongue, T1N0M0 Age 47 at Dx, non-smoker, casual drinker, HPV- Surgery: June 2005 RT: Feb-Apr 2006 HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105! Recurrence/Surgeries: Jan & Apr 2010 Biopsy 2/2011: Moderate dysplasia Surgery 4/2011: Mild dysplasia Dental issues: 2013-2022 (ORN)
| | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2011 Posts: 123 |
Jill..CG to Ken, age 43,mom of 1yr old girl. DIAG:12/9/10 SCC BOT T4N0M0 HPV+ START:1/3/11 IMRT dailyX35 and 7 chemo END:2/23/11 PEG IN:1/15/11 Out:4/26/11 CT/MRI 4/25/11-marked improvement CT 6/11 new spots BX 6/23-cancer present Total Glossectomy sched 7/20/11 7/19/11 Ken's suffering ended
| | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | Well, it's nice that she apologized. I hope it's not just a case of doing something dumb because you can always apologize for it later if you get caught.
Merely apologizing is not enough. If your friend lends you his car and you wreck it, "sorry" does not fix the damage, your have to either repair the damage or get him another one.
If it's really critical to her that people know the facts, then she at least try to repair some of the damage she caused by putting knowledgeable people on her show who can set the record straight. Just my two cents.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | Brian,
The other side to the 1st Amendment is the responsibility of the recipient of what is being communicated to apply filters based on their own set of knowledge, experience, intuition, culture, values, etc.
I firmly believe the vast majority of people in our culture today accept short sound bites, tweets, email blurbs, etc. as some form of truth and fail to apply sufficient filters and just let this stuff sync into the psyche where it becomes "truth".
It is understandable but not excusable that people do not maintain a stronger filter shield to avoid all the nonsense that gets blown onto the public.
As to Katie Couric specifically, she is a has been and the sinking ship of a show she is on is going under end of season and she is jumping ship to Yahoo, really? Boy, now that is a forward career step if there every was one.
To be fair, what appears to have happened is she wanted to bring harder news stories to the show but the bosses wanted softer and more variety themed stories for that time slot.
As Forest Gump so eloquently put it, "Stupid is as stupid does".
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Mar 2002 Posts: 4,912 Likes: 53 OCF Founder Patient Advocate (old timer, 2000 posts) | OP OCF Founder Patient Advocate (old timer, 2000 posts) Joined: Mar 2002 Posts: 4,912 Likes: 53 | I have heard that on Friday she is going to have the head vaccine person from the CDC on her show� Clearly all the partial mea culpas so far have not quelled the rough seas. Let's see if this is a redeeming moment or not. Bottom line the damage is done. The odds that viewers of that bad segment will watch a correcting segment are only so so unless they are everyday viewers. But clearly the pressure to do more has been applied either with or without Katie's input. Please note that they have not put out any publicity about Friday's subject matter or guest.
Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant. | | | | Joined: Jan 2013 Posts: 1,291 Likes: 1 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jan 2013 Posts: 1,291 Likes: 1 | [quote]Please note that they have not put out any publicity about Friday's subject matter or guest.[/quote]When has the media ever made corrections anywhere else on the last page of the newspaper days or weeks later or put on as the last item in a televised program.
As you say even a full mea culpa will not take back the impressions left on those who watch the first segment. There are going to be those who happen upon the second show and view the retraction, correction, or whatever it may be. Does it balance out, who knows? What if the second segment has greater viewers? Does that mean more people listen to the benefits? Does this overcome the damage done by the first segment, who knows? We all know that the answer is we will never know.
At least there were enough feathers ruffled and hens cackling to force the network to review the topic. Maybe one could interpret this shows there is quite a bit of awareness and support for the vaccine.
Gotta run and set the DVR!
Bye, Don
Don Male, 57 - Great health except C Dec '12 DX: BOT SCC T2N2bMx, Stage 4a, HPV+, multiple nodes 1 tooth out Jan '13 2nd tooth out Tumor Board -induction TPF (3 cycles), seq CRT 4-6/2013 CRT 70gr 2x35, weekly carbo150 ended 5/29,6/4 All the details, join at http://beatdown.cognacom.com | | | | Joined: Nov 2006 Posts: 2,671 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Nov 2006 Posts: 2,671 | The only publicity I've seen about today's show did not include any interview with anyone from CDC.
Anne-Marie CG to son, Paul (age 33, non-smoker) SCC Stage 2, Surgery 9/21/06, 1/6 tongue Rt.side removed, +48 lymph nodes neck. IMRTx28 completed 12/19/06. CT scan 7/8/10 Cancer-free! ("spot" on lung from scar tissue related to Pneumonia.)
| | | | Joined: Jan 2011 Posts: 123 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Jan 2011 Posts: 123 | Maybe now that Katie is back peddling it will actually help with your work that you have in front of SU2C. It shows it is even more important to get correct information out there!
Jill..CG to Ken, age 43,mom of 1yr old girl. DIAG:12/9/10 SCC BOT T4N0M0 HPV+ START:1/3/11 IMRT dailyX35 and 7 chemo END:2/23/11 PEG IN:1/15/11 Out:4/26/11 CT/MRI 4/25/11-marked improvement CT 6/11 new spots BX 6/23-cancer present Total Glossectomy sched 7/20/11 7/19/11 Ken's suffering ended
| | | | Joined: May 2006 Posts: 720 Likes: 1 "Above & Beyond" Member (500+ posts) | "Above & Beyond" Member (500+ posts) Joined: May 2006 Posts: 720 Likes: 1 | The segment, toward the end of the show, was pegged as part of regularly scheduled Friday follow-ups to recent shows that sparked viewer feedback. "Very few shows have generated as much reaction" as the HPV show, Katie said, so "I want to make sure we all understand the facts about this vaccine and the human papillomavirus." Katie spent more than six minutes (an eternity in television time) interviewing Dr. Anne Schuchat, the director of the CDC's National Center for Immunization and Respiratory Diseases, who discussed facts about HPV, and the vaccine, that should have been included in the first program. You can view the Schuchat segment here. Note that the anti-vaccination folks are out in force in the comment thread, and the text below the Schuchat video seems to me to be weighted toward the anti-vax view.
Leslie
April 2006: Husband dx by dentist with leukoplakia on tongue. Oral surgeon's biopsy 4/28/06: Moderate dysplasia; pathology report warned of possible "skip effect." ENT's excisional biopsy (got it all) 5/31/06: SCC in situ/small bit superficially invasive. Early detection saves lives.
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