#17511 05-11-2005 05:38 AM | Joined: Apr 2005 Posts: 7 Member | OP Member Joined: Apr 2005 Posts: 7 | I posted a few weeks ago because of spot in my mouth. My dentist was treating as a Thrust infection. I saw a oral surgeon this morning. I thought at most they would just do a biopsy. My surgeon said no he wanted to remove the whole area. That it would be actual surgery. They are doing it in the morning. I think one reason I am scared as it seems to be happening so fast. My surgeon seems to think its one of three things. A fungus, a pre-cancerous area or cancer. He did tell me he may have to go down into the muscle area. Has anyone here had an area removed where they went into the muscle of the cheek? Was it very painful? Does it leave any premament damage to the cheek muscle? I forgot to ask my oral surgeon as I was kinda in a daze. Thanks for listening, Debbie
Deb
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#17512 05-11-2005 10:46 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Deb,
I'm not sure how big the "area" is that your doctor is talking about, but I don't understand the rationale for something that sounds that invasive without getting a biopsy first. Sixteen years ago, when my oral surgeon first suspected that I might have cancer on my tongue, he purposely did nothing beyond the biopsy stage until he could get a full pathology report and the advice of a head and neck cancer team. I believe the reason was that a more extensive surgical procedure up-front could create significant scar tissue that might impede additional treatments that would be necessary in the event it was cancerous.
I would urge you to get a biopsy first so you will have a better sense as to what you are dealing with.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#17513 05-11-2005 12:41 PM | Joined: Apr 2005 Posts: 7 Member | OP Member Joined: Apr 2005 Posts: 7 | Now I don't know what to do. Hes suppose to be a good oral surgeon. Maybe he thinks if it is oral cancer he can get all of it? Or maybe he wants as much of the area he can get when he sends it off to pathology? I just wish I had more time to decide. Thanks for replying. Debbie
Deb
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#17514 05-11-2005 02:51 PM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Deb,
The thing that concerns me about your post is your comment that everything seems to be happening so fast and you haven't had a chance to get reasonable answers to some serious questions about the extent of your surgery.
It seems to me if it's not cancer, then there's no reason to rush almost overnight into what sounds like a major procedure. If it IS cancer (which a biopsy should be able to tell you), you should then get the input of an experienced cancer team, who undoubtedly would have scans done to help determine the best course of treatment from there.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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#17515 05-11-2005 03:31 PM | Joined: Jul 2003 Posts: 1,163 Patient Advocate (1000+ posts) | Patient Advocate (1000+ posts) Joined: Jul 2003 Posts: 1,163 | Hello Deb,
I agree with Cathy, Why would you have such serious invasive surgery without a pathlogy report? It may not be cancer. If it is cancer your case should be evalauted by a team of doctors. It seems to me you are being rushed into this right now. I only want you to have the best treatment that applies to a firm DX.
Best Wishes, Danny Boy
Daniel Bogan DX 7/16/03 Right tonsil,SCC T4NOMO. right side neck disection, IMRT Radiation x 33.
Recurrance in June 05 in right tonsil area. Now receiving palliative chemo (Erbitux) starting 3/9/06
Our good friend and loved member of the forum has passed away RIP Dannyboy 7-16-2006
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#17516 05-11-2005 04:00 PM | Joined: Apr 2005 Posts: 7 Member | OP Member Joined: Apr 2005 Posts: 7 | I am so stress! I not only have to worry about oral cancer now I am worried sick if my surgeon is doing the right thing. My husband is coming in from out town in a few hours. I am going to tell him I want to wait and get a second opinon. I think I need more answers from the surgeon and a second opinon. Surely one week would not make a difference? Debbie
Deb
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#17517 05-12-2005 06:07 AM | Joined: May 2002 Posts: 2,152 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Deb, I'd call the docyor and get some answers to your concerns. Are you certain that he is not just doing a surgical biopsy like they did with the one lymph node in my neck. That allowed them to get the answers they needed accurately and immediately. A second opinion never hurts.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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#17518 05-12-2005 10:01 PM | Joined: Apr 2005 Posts: 7 Member | OP Member Joined: Apr 2005 Posts: 7 | Just wanted to let all of you know I did have the surgery yesterday. Before I had it my husband and I had long talk with my surgeon. I wanted to tell all of you that you gave me the courage to speak up and ask questions! The reason he wanted to take the whole area out now was if its cancer he hopes he got it all. He seems to think area was small enough to do this. I get my results next Wed. Please say a prayer for me. Thank you, Debbie
Deb
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#17519 05-13-2005 01:02 AM | Joined: Apr 2004 Posts: 837 "Above & Beyond" Member (300+ posts) | "Above & Beyond" Member (300+ posts) Joined: Apr 2004 Posts: 837 | Deb,
I hope the pathology report shows that it wasn't cancerous and that you don't have to deal with a recurrence of whatever it was.
However, if it does turn out to be cancerous, please DO NOT take the word of a single surgeon that he "got it all". Unfortunately there are too many people here who heard those words and developed a false sense of security from them.
Please keep us posted on how you're doing when you get the results.
Cathy
Tongue SCC (T2M0N0), poorly differentiated, diagnosed 3/89, partial glossectomy and neck dissection 4/89, radiation from early June to late August 1989
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