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"OCF Canuck"
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"OCF Canuck"
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He didn't have a lot of side effects with them. smile


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
Joined: Nov 2013
Posts: 33
"OCF Canuck"
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"OCF Canuck"
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Joined: Nov 2013
Posts: 33
PaulB simply reading your profile has made me gasp, but to read about the hurdles you go through daily makes me wish, so badly, that I could do something to help you. Thank you for all the work and help you put into this site. Good luck with all your treatments. You are a leader.


Ja 2013 tongue, red sore spot, r/r edge + white strip underneath, no pain
Al Bx on spot, strip, and vocal cords, lab rep benign
Oc 24 Surgeon follow-up, larger Bx req'd
Oc 25 Bx bits to Vanc. Cancer lab
No 14 MD said more ca investig'n req'd
No 19 Prince George CC, MRI & CT
No 20 PGCC Oncol says cancer
De 2 Vancouver Cancer Centre, PET/CT
De 31 VGH partial glossX + ex spot on vocal cords
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PaulB Offline OP
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Thanks Carpe Diem.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Jul 2012
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PaulB Offline OP
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Still waiting on radiation treatment to start, but still no word, probably due to all the radiation, surgery I had, and continue to see my other doctors. I have three teeth infected in the gums, and nothing the oral surgeon can do, no extractions until HBO, no HBO until there is no cancer. The oral surgeon put me on three weeks of antibiotics, and hopefully that will help, and go back on Thursdsy for follow-up. Needed some scripts from my PCP, and blood pressure was 179/93, and saw my oncologist today, and was 150/100, so I have to see the cardiologist before treatment. My hemaglobin went up to 9.9 from 9.2, in a few weeks, which usually goes down, but it could have been lowered by surgery, radiation, and is recovering from that, and not being killed off. Tomorrow, I go for chemo training with the nurses, I guess to review side effects, nutrition, hydration, infections?


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Sep 2013
Posts: 94
Supporting Member (50+ posts)
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Supporting Member (50+ posts)

Joined: Sep 2013
Posts: 94
Urgh Paul, this is so beyond my knowledge that I can not say anything constructive. Just wanted to say that my heart goes out to you and that I can not even imagine what you must be going through. Your courage is an inspiration. Sending all the healing thoughts and positive vibes I have.


36, female, left tonsil HPV+ SCC, T2N1
8/28/13 SCC in left tonsil
9/12/13 surgery:TORS and selective neck dissection (levels II-IV), 23 nodes removed
9/18/13 post surgery biopsy: 2mm clear margins, a 7mm lymph node positive in level IV, no ECL
10/28/13 rad begins, 30 treatments, tomotherapy
12/09/13 radiation ends!
2/10/14 papillary thyroid cancer
2/26/14 PET shows clear neck other than thyroid cancer, but with high uptake in an ovarian cyst
2/27/14 thyroidectomy
3/5/14 pelvic ultrasound



Joined: Nov 2013
Posts: 34
Contributing Member (25+ posts)
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Posts: 34
Hey Paul, I second what Ambra has said. You are an inspiration. I realize sometimes it is almost overwhelming to me, but to hear your ordeal is a whole new level. keep fighting the fight, I hope you get your HBOT dives in soon and you have slayed the beast. Ambra, congrats on finishing your rads. hope you are doing okay.


discovered a golf ball in my neck St.Paddy's day 2010.
Dx stage 4a left tonsil ca may 2010 at 50
non smoker, moderate beer drinker
HPV-16 pos.
tosillectomy
9 weeks Cisplatin
35 rads
nov.2010 PET NED
2011 2x PET NED
2012 2x PET Ned
3/13 Pet NED
SEptember 2013 Pet uh-OH.questionable and anxious
follow up pet, yup, its back.
mets to sub clavivular and mediasteinum nodes
biopsy positive scc.
trying to figure out next step
my imaginary friends think I am crazy.
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PaulB Offline OP
Patient Advocate (old timer, 2000 posts)
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Posts: 3,267
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Thank you both.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Mar 2011
Posts: 1,024
"OCF Kiwi Down Under"
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"OCF Kiwi Down Under"
Patient Advocate (1000+ posts)

Joined: Mar 2011
Posts: 1,024
Paul, I'm sorry the dental issues continue and really do hope the antibiotics settle the infection down.
Can you ring the radiation doc and push to get this rolling for you? Though of course you may want to wait until after Christmas.
At least your haemoglobin is trending in the right direction. The BP still needs a bit of fine tuning, guess the Cardiologist will sort this for you.
Hope you get all the reassurance you need from the chemo Nurses to be relaxed enough and calm for the chemo. I understand your worries given your previous history.
You are like the energiser bunny - just keep on keeping on.
Tammy


Caregiver/advocate to Husband Kris age 59@ diagnosis
DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT.
PET 6/11 clear.
R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED
Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in.
March 2017 - 5 years disease free. Woohoo!
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PaulB Offline OP
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Thanks Tammy. I spoke with the radiation oncologist last week, and the physicist is still working on the treatment plan which takes 3 weeks, so it's almost that time next week, but feels longer. My oncologist is going to be in contact with the RO. I previously asked about starting after the new year, and said, no, ASAP? I can wait too. Calling tomorrow for a cardiologist visit, and have one I've seen before for a stress test for surgery, and hope to get one next week.


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs






Joined: Dec 2010
Posts: 5,260
Likes: 3
"OCF Canuck"
Patient Advocate (old timer, 2000 posts)
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"OCF Canuck"
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Joined: Dec 2010
Posts: 5,260
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Paul... clean is your friend. I an not sure how sore things are in your mouth. But if you don't own a waterpik... try and get one. Even if you spritz on the lower setting.

After each and every meal.. brush rinse and spritz.

antibiotics will help, and then keeping the area clean will help.

It's the same premise as flesh wound. It's a slow process but your mouth carries mega bacteria etc... so keeping the area clean will minimize progression of the infection. Rinsing with the baking soda etc.. should help as well. You want to rinse out any particulate and gunk. If you are using the waterpik clean along the gum line and make sure to angle it away so that you are not pushing bad stuff under the gum. You mostly want to clean between your teeth and along the gum.

Be meticulous.

take care. Hugs.


Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
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