| Joined: Feb 2005 Posts: 118 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Feb 2005 Posts: 118 Likes: 1 | Long term effect from radiation? I probably have it! I just got results of a CT of my neck and discovered I have "atheriosclerotic calcification at the origin of the right external carotid artery resulting in a 40% diameter stenosis." It looks like I will be adding another specialist to my doctor arsenal, hopefully one without "surgeon" at the end of his or her title. That does seem doubtful since it looks like I may need to see a cardiovascular or vascular surgeon.
Any long term survivors with this malady? I will stay in touch as I travel this path.
Be well. Zenda 12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
| | | | Joined: Mar 2011 Posts: 1,024 "OCF Kiwi Down Under" Patient Advocate (1000+ posts) | "OCF Kiwi Down Under" Patient Advocate (1000+ posts) Joined: Mar 2011 Posts: 1,024 | Hi Zenda, this is unfortunately quite common, even in those of us lucky enough not to have had radiation. Usually no treatment is required unless the blockage is about 80%. Tammy
Caregiver/advocate to Husband Kris age 59@ diagnosis DX Dec '10 SCC BOT T4aN2bM0 HPV+ve.Cisplatin x3 35 IMRT. PET 6/11 clear. R) level 2-4 neck dissection 8/1/11 to remove residual node - necrotic with NED Feb '12 Ca back.. 3/8/12 total glossectomy/laryngectomy/bilat neck dissection/partial pharyngectomy etc. clear margins. All nodes negative for disease. PEG in. March 2017 - 5 years disease free. Woohoo!
| | | | Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | Hi Zenda,
I had my left carotid artery removed last month due to cancer involvement, reirridation. Before the removal, I had an Angiogram on both arteries, CT scan and probably ultrasound Doppler, the works, and a temporary balloon occlusion test to see if I could survive with one artery blocked, in my case to be resected, and passed the test. I don't know if any blockage was found during these tests, and plan on getting written copies of the them. I have the CD, and can't make heads or tails of it. The biopsy of the left carotid shows calcification. Prior PET/CT scans a year ago, showed slight arteriosloris in the arteries to the heart. I guess other things can contribute like smoking, high blood pressure, diabetes, diet, and as finding out, radiation.
I plan on seeing a cardiovascular doctor too, and hope to be monitored, with only one carotid arterty left. Maybe I'll go to the hospital that did my testing that has a world renowned neuroscience program. I also read chiropractor manipulation can cause problems with stenosis, like stroke, and believe massage or any other manipulation also. No one other than my ENT, medical team, is touching my neck lol.
Good luck with everything.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: Dec 2003 Posts: 2,606 Likes: 2 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Dec 2003 Posts: 2,606 Likes: 2 | Hi Zenda,
I am curious what type of doctor you see and what they even suggest. I'm suffering from this head to toe. I was told nothing can be done by my cardiologist. It's more veins for me and not arteries.
SCC Stage IV, BOT, T2N2bM0 Cisplatin/5FU x 3, 40 days radiation Diagnosis 07/21/03 tx completed 10/08/03 Post Radiation Lower Motor Neuron Syndrome 3/08. Cervical Spinal Stenosis 01/11 Cervical Myelitis 09/12 Thoracic Paraplegia 10/12 Dysautonomia 11/12 Hospice care 09/12-01/13. COPD 01/14 Intermittent CHF 6/15 Feeding tube NPO 03/16 VFI 12/2016 ORN 12/2017 Cardiac Event 06/2018 Bilateral VFI 01/2021 Thoracotomy Bilobectomy 01/2022 Bilateral VFI 05/2022 Total Laryngectomy 01/2023
| | | | Joined: Feb 2005 Posts: 118 Likes: 1 Senior Member (100+ posts) | OP Senior Member (100+ posts) Joined: Feb 2005 Posts: 118 Likes: 1 | No big deal. I will check with my PCP on my next visit, but it was a relief to hear that three of my cancer team doctors are not concerned with my 40% blockage, since there are no problems in my other carotid arteries. As Tammy stated, "Usually no treatment is required unless the blockage is about 80%." I have my cholesterol and triglycerides checked and have never had out of range readings, and my RO thought that the 2005 XRT "may be" the cause for this stenosis. No specialist required.
Paul, I think it is wise on your part to see a cardiovascular specialist since you are now down one carotid artery and do have arteriosclerosis elsewhere.
Be well. Zenda 12/04 SCC Tonsil, Stage IV T3N2BM0. Mod RND, resect right oropharynx, free-flap, resect right tongue base. Erbitux,Docetaxel,RT X 33. 6/08 Mets lung, hilar lymph node:Carboplatin, Docetaxel. 2010 2nd clinical trial:lung clear, node stable. ORN,trismus,dysphagia. 8-10/2012 cryoablation,brachytherapy,cyberknife to lymph node. 12/12 NED. 6/13 Mets RLL lung: 8/13 cyberknife. 11/13 NED.
| | | | Joined: Dec 2010 Posts: 5,264 Likes: 5 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,264 Likes: 5 | Yeah... That's my mother in law at this point she is completely blocked on one side, and 80% on the other... We're trying to get through my father in-laws esophageal cancer and then tackle that puppy... I have been telling my husband and sister in law over a year now that they HAVE to operate on her as she has had numerous mini strokes and has hypoxic demential. They are all in denial "but if something happens when she is on the table we will never forgive ourselves.." Are you frikkin kidding me...? So what we wait until she strokes out and dies or worse ends up in a nursing home like my dad...(wouldn't wish that nightmare on anyone!!! ) I keep telling them - inaction is a choice and it is an action of itself. Zenda you're okay as long as your other carotid is clear. It's when you start having more issues (memory) etc... That you need to seek treatment before the damage becomes permanent and you have continual digression. Hugs
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Aug 2013 Posts: 144 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: Aug 2013 Posts: 144 | It is tragic. So much for Us, and those who love and care for us to have to endure. I am so sorry ZeldaT, I hope things turn out good for you. And Paul, Uptown, Cheryld and Tamvomk. I hope you guys are hanging tuff, like I know that you are. I am getting a check on my artery status ASAP! All the best, Shawn.
. Radio/Erbitex:(35/6.) .6/13 RSSC with met.to left neck.9/11/13 MND with left tonsil removal.9/18/13 margins failed, .Dx Terminal. 10/22/13 Dx.StageIII Lymphedema. Carboplatin/Taxol, cancer progression,WECF 3/14/2014 given 2 weeks, 3 maybe. All the veins in my head are slowly leakinging due to Ehlers Danlos syndrome. lucky thing is that my spinal fluid leaking out my nose is slowing the build up of pressure in my huge, huge head. you would not believe.
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