| Joined: Jul 2012 Posts: 3,267 Likes: 4 Patient Advocate (old timer, 2000 posts) | Patient Advocate (old timer, 2000 posts) Joined: Jul 2012 Posts: 3,267 Likes: 4 | A neck dissection also depends on the tumor size, thickness, location of tumor, tumor histology or grade, if it's midline on the tongue, base of tongue, other areas, and the base of tongue, tonsils have a high propensity to metastasise due to the high lymphatics they are, as well as HPV metastising early to the nodes, which tumors may bigger than the primary itself, and and other negative prognostic findings like extracapsular spread, invasion, perineural invasion, lymphovascular invasion.
10/09 T1N2bM0 Tonsil 11/09 Taxo Cisp 5-FU, 6 Months Hosp 01/11 35 IMRT 70Gy 7 Wks 06/11 30 HBO 08/11 RND PNI 06/12 SND PNI LVI 08/12 RND Pec Flap IORT 12 Gy 10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux 10/13 SND 10/13 TBO/Angiograph 10/13 RND Carotid Remove IORT 10Gy PNI 12/13 25 Protons 50Gy 6 Wks Carbo 11/14 All Teeth Extract 30 HBO 03/15 Sequestromy Buccal Flap ORN 09/16 Mandibulectomy Fib Flap Sternotomy 04/17 Regraft hypergranulation Donor Site 06/17 Heart Attack Stent 02/19 Finally Cancer Free Took 10 yrs
| | | | Joined: May 2011 Posts: 287 Gold Member (200+ posts) | Gold Member (200+ posts) Joined: May 2011 Posts: 287 | Hi Naveen, sorry you had to be here but then this place has great people and lot of information that will help you in your journey.
Please do share where you had your treatment from and doctors as there are some visitors from India as well and they might get some help.
You now need to take good care of yourself. Had you been tobacco consumer/drinker?
Keep checking in and all the best for future. Father; 67 yrs; RIP: 2012/05/26
TX:SCC pT2N1M0G2;Glossectomy+SND+CCRT(59.3Gy+6xCis.)[2009] TX:Nodal Mets; 3xDCF[2011/05/05] TX: RND + PMMC Flap[2011/07/11] DX:SCC PNI+ECE TX:Re-RT 60Gy[2011/09/21] TX:Gefitinib 250mg[2011/12/18]
| | | | Joined: Dec 2013 Posts: 5 Member | OP Member Joined: Dec 2013 Posts: 5 | Hi Everybody.
Thanks for the reply.
Please let me know what precautions I have to take after this?? I Have to live like this only with regular checkups and all? What are the chances or recurrence. Any treatment to avoid the same to come again.
Thanks Naveen | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Sep 2012 Posts: 58 | Hi Naveen,
I was diagnosed with the same desease over a year ago. My lesion was about the same size as yours. The doctor performed only a surgery and no further treatment was required. He said if we can avoid radio then we would usually avoid it, if we have to do it - we do it. From this website I noted that the choice of treatment depends on the country. In US they tend to do radio in all circumctances (i might be wrong though). I was treated in UK and I know many patients avoid radio here.
With regards to the recurrence chances - probably no-one will tell you this. You should stay on a long-term follow-up and your doc will keep a close eye on you. Try to think that you are treated and throw away from your head all the negative thoughts about R*********!!!
Last edited by Max1987; 12-10-2013 05:06 PM.
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm) 15/10/12 - operation: partial glossectomy + neck dissection 17/11/12 - operation: excision of the tongue scar (or extensive biopsy) 26 y.o., non-smoker, social drinker
| | | | Joined: Dec 2013 Posts: 5 Member | OP Member Joined: Dec 2013 Posts: 5 | Hi
I had my treatment done at B L Kapoor Hospital at New Delhi ( INdia) The Dr. Ramalingam told me that there is no need of radiotherapy or chemotherapy is required just followup is required. . Regards Naveen | | | | Joined: Sep 2012 Posts: 58 "OCF across the pond" Supporting Member (50+ posts) | "OCF across the pond" Supporting Member (50+ posts) Joined: Sep 2012 Posts: 58 | ok.. then trust your Dr. if he told you this
25/09/12 - diagnosis: lateral left side tongue moderate SCC (10-15mm) 15/10/12 - operation: partial glossectomy + neck dissection 17/11/12 - operation: excision of the tongue scar (or extensive biopsy) 26 y.o., non-smoker, social drinker
| | | | Joined: Dec 2013 Posts: 1 Member | Member Joined: Dec 2013 Posts: 1 | How much did it cost you to go through the treatment?
10/13 Lt Tongue biopsy with Hyperplasmia Squamous Cell 10/13 Normal Blood Test 11/13 Antibiotics did not help, white lesions/mass continue to grow 12/13 send to ENT for 2nd opinion 12/13 feel numbness, irritation, needles on bottom of hands and feets 36yr male no smoke, casual drink | | | | Joined: Dec 2010 Posts: 5,260 Likes: 3 "OCF Canuck" Patient Advocate (old timer, 2000 posts) | "OCF Canuck" Patient Advocate (old timer, 2000 posts) Joined: Dec 2010 Posts: 5,260 Likes: 3 | Keep a close eye on your mouth and neck. Anything unusual quickly get in to see the dr again. You may never have a recurrence but diligence is key. take care.
Cheryl : Irritation - 2004 BX: 6/2008 : Inflam. BX: 12/10, DX: 12/10 : SCC - LS tongue well dif. T2N1M0. 2/11 hemigloss + recon. : PND - 40 nodes - 39 clear. 3/11 - 5/11 IMRT 33 + cis x2, PEG 3/28/11 - 5/19/11 3 head, 2 chest scans - clear(fingers crossed) HPV-, No smoke, drink, or drugs, Vegan
| | | | Joined: Apr 2013 Posts: 319 Platinum Member (300+ posts) | Platinum Member (300+ posts) Joined: Apr 2013 Posts: 319 | [quote=navkal]
Please let me know what precautions I have to take after this??[/quote]
Don't drink or smoke. When I read that 70% of people who drink after going through successfully beating it the first time, have it recur; I quit drinking entirely. (When it came back 18 months later, I restarted, but only since I'm incurable anyway at this point.)
[quote=navkal]I Have to live like this only with regular checkups and all?[/quote]
I strongly recommend that you adjust the way you look at your situation. You will always have to have check-ups of one kind or another, and that is simply your situation in life. Remind yourself that this is just like brushing your teeth and don't give it have any more thought you would give the need to brush your teeth regularly.
[quote=navkal]What are the chances or recurrence.[/quote]
No one can answer that. Since this is the case, don't give it a thought; it's not something that you can control.
[quote=navkal]Any treatment to avoid the same to come again.[/quote]
My strong advice is use this experience as a reminder that life is uncertain, fraught with danger of infinite variety, and completely unpredictable. This is the case with every human who has ever lived, and thus no different to you, or me, or anyone else.
Since the above is true, and it is not something that we can control, the path to a peaceful mind in dealing with it is to give it no thought, beyond that necessary to survive when disaster, such as a cancer diagnosis, does strike.
When disaster does strike, focus your thoughts on the immediate need to survive and identify and take those steps that you can control; such as getting proper medical (and/or other) treatment for the problem.
When I say, "focus your thoughts on..." that means that when your thoughts start to wander and begin to wonder about the future, you actively direct them away and back to focusing on what you can do and control.
When you don't do that and let your thoughts focus on what the outcome will be, you are inviting suffering and misery into your mind because no matter what you do, you cannot control that which is beyond your ability to control and frustration and fear are all that you will produce.
In every situation, there is usually an outcome that you would prefer and it's a good idea to plan for and take every action within your power to obtain that outcome. BUT, and this is huge, do not attach to that outcome.
If you heed this, you will have mental peace from the knowledge that you have done everything in your power to achieve the favorable outcome, and whatever the outcome actually is; you have no more power over that than you have over the weather. That is, none. Such is the nature of life. Live and Celebrate it!
My intro: http://oralcancersupport.org/forums/ubbt...3644#Post16364409/09 - Dx OC Stg IV 10/09 - Chemo/3 Cisplatin, 40 rad 11/09 - PET CLEAN 07/11 - Dx Stage IV C. (Liver) 06/12 - PET CLEAN 09/12 - PET Dist Met (Liver) 04/13 - PET CLEAN 06/13 - PET Dist Met (Liver + 1 lymph node) 10/13 - PET - Xeloda ineffective 11/13 - Liver packed w/ SIRI-Spheres 02/14 - PET - Siri-Spheres effective, 4cm tumor in lymph-node 03/15 - Begin 15 Rads 03/24 - Final Rad! Woot! 7/27/14 Bart passed away. RIP!
| | | | Joined: May 2013 Posts: 134 Senior Member (100+ posts) | Senior Member (100+ posts) Joined: May 2013 Posts: 134 | Where did the 70% number come from? Would really like more info on that !
Dx March 2011 via FNA (49 yrs old) SCC BoT HPV+ exact strain unknown Stage IVa T3N2cM0 Cisplatin x 3, IMRT x 40 (7267 cGy) One node removed post-treatment (rad dmg) Clean PET 10/28/11 Swallow therapy | | |
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